fibromyalgia cured e-book

[kate_penney]

I was on the internet last night and found a e-book called fibromyalgia cured,so i was just wondering if anyone as read it it is from America .or is it just one persons view on a cure.

[ladytelita]

Being that researchers are still finding the cause for fibro, I find it hard to believe that anyone has a cure. I would imagine it's simialr to other books that tell you ways you can cure cancer but the medical practice don't want you to know! There's hundreds of them on amazon. Lol and having just looked there's almost as many for fibro and ME.

By all means try these things; it's possible one will help you. Although I would avoid the one that looks like a book full of exercises. As a person who was fit, healthy, muscular before this started, I know that doing more exercise doesn't help! It just takes you down a whole lot faster. *sigh*

P.

[jillylin in reply to ladytelita]

Like you, I was super fit before all this. I do exercise but always end up overdoing it because of what I expect of myself from the past.

Hugs

Jillyxx

[ladytelita in reply to jillylin]

Ditto. Yet again I did that yesterday. I really do have to learn to pace myself. Woke up with sever wrist pain, dizzyness and my shoulders screaming at me. Lovely!

[Riles-17 in reply to ladytelita]

I so agree with that exercise really does make it worse. My GP said try exercise more than just walking dog. Yeh I did and spent 5 days on the sofa. Exercise uses muscles we have a problem with muscles and muscle fatigue so what is the answer I wonder if they could find us an exercise programme that doesn't involve using muscles ( that's sarcasm by the way) even doctors don't fully understand. Walking my dog is on days a massive ordeal. Then to exercise on top er yeh right o.

[ladytelita in reply to Riles-17]

Yes, it's always so nice to be told we need to exercise more. I'm thankful I have a gp that tells me off for doing too much (although I still do it anyway). I place a great deal of expectation on myself and push it constantly. Trouble is the more I push, the worse I get. I almost feel like I'm waiting for the big fall to happen, so that the medical world will actually try and stop the pain and make me better. Almost like I want the big fall to happen, you know? I don't, but I know I can be quite self-destructive. For a book to come out say the way to be better is to do more and eat less, I seriously want to go on a maiming spree.

P.

[Riles-17 in reply to ladytelita]

I know what yo mean about pushing yourself. Working in a a school you don't get time to do things eg go to bank ,house things. So when I'm off on hols I write myself a list of things needing doing eg painting kitchens, polishing floor I go through each room and list all that I need to catch up on. Now is a good time to say I also have OCD in a bad way GERMS dirt and untidiness, so I write impossible lists. It was ok before diagnosed I could sort inside and out no problem. I painted the hall ceiling which is long and narrow but not too big, I spent 2 days on the sofa, it's a joke. This summer I have had to really think about what I am doing and I've had to come to terms with the fact I am worse than last year and can do less. I get so frustrated that I can't do it. I like things done yesterday.

[jillylin in reply to ladytelita]

I have actually been advised to cut down the exercise. When you have been used to being physically extremely active all your life , there is that inbuilt need to push the body. Almost if we push hard enough, do more and more, we can somehow get rid of this FMS. I have a real need not for it to defeat me but I know it's going to

Hugs

Jillxx

[Hidden in reply to ladytelita]

I totally agree! I used to be a human whirlwind. The first time I ever sat down during the day was when I went to bed at night. I just fought through the pain until I could stop. The last six months have been some of the worst of my life (and that's really saying something). I wake up crippled. I hobble out of bed with all my muscles screaming at me.

I can't straighten my legs and the pain is immense.

A couple of days ago I started getting a really nasty painful spasm in my left buttock.

It's eased up a bit, but I never ever have a time when I'm not in some sort of pain.

This invisible illness is killing me inside

Coz xx

[ladytelita in reply to Hidden]

Awww Coz! *hugs* I hate waking up in pain. Just always bodes badly for the day, and usually my temper too. It's amazing really, how we all adjust to living with a certain level of pain all the time, like we decide what we can cope with and 'ignore' it. I stuck it in quotes because we all know it doesn't let us totally ignore it, ever. I hope you have some decen p.k's at the very least. Take care.

P.

[Hidden in reply to ladytelita]

Thanks for your lovely message and much appreciated hugs.

It's wonderful to come here and chat to friends who know exactly how you're feeling ~ and actually care.

That's what keeps me going. This site.

Thank you

Hugs x

[fibro]

i think t depends what sort of exercise. I've never been fit after being born with problems so could never even join in actively at school, i believe thats added to my problems, but all that aside, i reckon if you were to take all the posts from this forum and form them into a book we could try selling it back to them.... just all it.... A cure, but in our words!! i think someone is trying a get rich quick scheme, keep your money and put it to better use xxx

[suffolklass]

Hello. There might be something useful in the book that will work for some but we all seem to differ so much it's not predictable.

When I was applying for ill health retirement Capita told me that exercise would cure me. So I did an NHS approved back to health exercise course and was signed off for 3 months by my GP!

Prof Davies told me that a degree of "exercise" is good to keep movement but for some actual "proper" exercise is the worst thing to do as it aggravates everything and causes untold pain and fatigue.

Some people with little, or none really, knowledge can do so much damage in their ignorance.

Give it a try and take what you can from it.

Xx

[Deefer]

Sadly there is no cure as such, but you can learn to manage the symptoms and regain a little control over your health. I'm a great believer in cognitive behavioural therapy. It takes time to learn but can make a big difference because it changes the way you see and do things. I am wary of any book or person who says they have a cure - it more often than not involves someone making money and taking advantage of people like us.

[kate_penney]

Thank you all for the reply's.

[Matrix]

There is no cure for fibro nor do I think there ever will be .Its just a ploy to part you from your money .I have had fibro over 50years since childhood ,spent lots of money chasing a cure ,trust me when I tell you the best thing is to accept you have it pace yourself and rest when you need it .Good luck with everything .x

[Morwenna]

like it Matrix what i have been saying go with it don't feel guilty if you rest ... then others around you have to learn and can only learn from you by your action ^_^ .. in the end they to will learn what you need from them xxx

[phlebo123]

Sadly Kate Penney there is no cure yet..... just learning how to live with it! Understanding what you are capable of and knowing your limits.... this is "pacing yourself" . Acceptance is equally important.... realizing that you have to accept what you can and cannot do.... for me "gentle" exercise works.... short walks , yoga, swimming, a little gardening.. and recognizing that as soon as anything starts to hurt then stop and rest! Also learning to say "no" when family and friends expect you to do too much. Xx