Does anyone else loose track of time and wonder what they have been doing? cos nothing to show for it!

[fibrojude]

[chorley]

Hi Jude.

Good Morning, Good Afternoon, Good Evening, Good Night, that was either a very short day or once again i have compleatly lost the track of time, Yep thats me, i wake up in the morning around 6:50am and fight to get out of bed, i then come down stairs and beging to make the sandwiches for my wife and daughters dinner while my wife makes her and my daughters breakfast, then by around 8am both my wife and daughter have left the house and i am here all alone. i sit down to relax and have a brew, throught out the day i try to potter arond the house and keep busy the next thing i know its 4pm and my daufgter is walking through the door from school, thats when i go to the kitchen to make a coffee and look over at the sink to see the pots that i put in at 9am BUGGER where did my day go ??

CHORLEY

[Rach1977]

Oh yes all the time....I now wonder how I ever worked, did the housework, shopping, look after son etc etc. I think the days are shorter now.

I also really hate when I need to go to bed as I get frustrated that I am losing a day

with nothing to show for it. However sometimes needs must and I just go with the flow.

I am forcing myself to go for a little walk in a mo so I get out of the house, exercise my shacky legs to get some muscle bulk back and also some fresh air. Might regret it once I feel the icy air!!!

What do you do everyday? x

[Rach1977]

Sorry I am always writing bogs or replies and I miss out words..... with my replies you have to fill in the missing words!!!...that'll give you all something to do whilst relaxing when the day is flying by xx

[Hidden]

I wonder where all my days and nights go, half the time I haven't a clue what day, date or time it is. This came as something of a shock to me, as I always had to be organised and everything was put in my work diary so that board meetings etc ran to time and everything was documented. Now I muddle through my nights and days not really having a clue. I think the best thing is to try to accept that we are different now, we think differently. It's so easy to get really frustrated, I used to get really angry with myself not remembering the simplest thing. Sometimes I make dinner for my family and it really feels as though it should be breakfast time. I feel very sorry for Mums with small children to get to school who need to be organised, thankfully my three children are passed school age now, so I am blessed in that respect. It's all part of having Fibro, the mind muddle or brain fog. We tend to be very hard on ourselves too, I know I do. It's hard to accept radical changes in our lives, it takes time to accept these changes and also for family members and friends to understand that we don't forget simple things on purpose, it's purely the nature of our condition.

[fibrojude]

What do I do ! wake up around 7 get breakfast for my 7 and 15 year old eldest has a mimi bus pick her up as her school miles away! and i run youngest to school , dont know how some days ! just taking shower im yawning! back from school its in the office answer any emails or send out any orders , i run a business from home distributing a hair accessory ,well i did i should say , my poor partner has ended up doing most of it ,cos i forget things and keep falling asleep when sitting at pc .I used to do trade shows two years ago ,couldnt do it now !I have other children too 5 in all one son age 28 daughter 26 daughter 22 and a step daughter age 10 , my children have given me three grandchildren this year one in april two in Nov with in a week of each other! had my daughters graduation last week, my daughters 16th this year and soon a wedding in march and my other daughters prom in may . so im pretty busy ! I try and do what i can know cos im worried im getting worse slowly and wont be able to have them stay or look after them as they get older! some days i cant go out with them cos the cinema sends me into a flare too noisy and flashing and play places drain me the noise does it!! dont know if my answer making sense my brain going right foggy so will cut here , night all take care hope you all pain free tonight! wouldnt it be nice ....can only but dream :=)

[Burr]

And I thought it was only me lolxxx you are not alone

[gypsycrafter]

The times I have been accused of being lazy I have lost count of, Other people cannot understand what we are feeling. Today I was told I had dementia because I had no clue what day it was. i live alone and dont see people for days at a time no wonder I dont know! plus I have FIBRO and my brain is foggy. I just laugh cos I dont want to cry again. take care all. soft hugs xxx

[fibrojude]

Im often reduced to tears then i see my friend with cancer and i think count my blessings had to deal will others feelings isnt it Gypsycrafter, but you have us we understand chin up hun xoxo