Does anyone also have Joint Hypermoblity Syndrome as well as the Fibro?

[mamma76]

[mrsellgee]

I was told by rheumatologist recently that I have hypermobility but only in my knees as well as fibro.

[pottyness]

i've had hypermobility in my ankles, knees, hips and back all my life. dont think any other joints are affected. my daughter has it in almost every major joint including all her fingers and all her toes. praying that fybro and hypermobility aren't connected other wise she hasnt a hope in hell of not getting fybro when shes older. shes 14 at the moment. .

[nawtynita]

i also have joint hypermobility as well as fibro

[raegreen]

i have both hypermobility and fibro x

[CC1991]

My sister suffers from fibro and has hypermobility joints, but the hypermobility is common through the majority of our family and she is the only one to suffer fibro, I don't think that one neccesitates the other

[Tavia]

I suffer from both. I have hypermobility in fingers, wrists, shoulders, hips, knees etc. I've had the hypermobility all my life, Fibro ( officially ) for two and a bit years.

[Kestrel]

Yes I do. I was diagnosed with HMS 17 years ago and Fibro last year.

[Sirann]

I also have hypermobility in my joints....to think I was a gymnast and they used to call it being double jointed, my son who is almost 30 also has hypermobility and I am starting to see sifns in him of Fibro

[LindseyMid]

Yes, I have HMS/BJHS. Hypermobility is now considered to be a risk factor for developing Fibro.

[inspireme2]

i have had fybro for 19yrs and a rhumatologist recently diagnosed me with hypermobility joints. Never in my life have i been double jointed. I can't accept this diagnosis.

[mamma76]

I had never heard of HMS until i was sent to Rhematology. I was never aware i was double jointed. My daughter is showing signs HMS too.

[Shedevil_kt]

i have elhers danlos syndrome type 3, hypermobility,me,pots and obviously fibromyalgia.

if you do suffer with hypermobility or even if you dont go onto the hmsa website it is good hypermobility.org/index.php.

but there is a forum on this site which saved my life by having the most amazing information and guidence from other suffers hypermobility.org/forum/ind...

[mamma76 in reply to Shedevil_kt]

Thank you will go have a look

[cherryflan]

Me too. x

[jopp87]

Hi ladies

Has anyone else been misdiagnosed as having fibromyalgia and hyper mobile joints, when they just have bad hypermobility/ Ehlers-Danlos Syndrome type 3? I have just been diagnosed as fibro/hypermobile but the Rheumo only pressed 6 of the 18 trigger points for fibro as I was spasming/pain so badly. I'm obv unhappy about fibro diagnosis and when looking up hypermobility found a great site (recommended on here). It has explained that hypermobility/EDS can often be misdiagnosed as fibro - their forum is particularly good and one lady was diagnosed as hypermobile with Fibro for years only to be confirmed as just having EDS recently - I am just wondering if anyone has had the same thing happen, and hopefully providing a bit of guidance for anyone unconvinced about fibro diagnosis?

the website is hypermobility.org/

the forum post I referred to is hypermobility.org/forum/vie...

Take care and Merry Xmas!!

Jo xx

[jopp87]

Hi ladies, im so sorry to hear you are all suffering like that - JHS and fibro don't exactly help each other! this is really good set of info for doctors on how to diagnose JHS - it really helped me accept JHS as i hadnt shown any signs nearly growing up (or i didnt know they were signs)

reumatologia-dr-bravo.cl/?l...

xxxx