My pain consultant mentioned that this was a rare pairing for fibro so I'm curious to find someone else like me.
I would like to know how you cope and manage to balance the two together. I've struggled for years with various health problems whilst managing the pain that goes with it alongside the dislocations, strains and sprains. What meds do you take? can you manage exercise/physio? I'm currently having problems after hydrotherapy sessions with my joints slipping and sliding making it difficult to move about and I may have to stop the sessions. I hope this doesn't happen as its helping very much with my reconditioning!
I'm particularly frustrated about the fact there isn't much that they can do for me except manage and increase my current meds. I'm also very sad about the loss of my independence as I've recently lost a lot of mobility and need to use a wheelchair to get out anywhere and its kinda looking like its part of my future prospects to be stuck like this.
How can I plan anything? I don't know what I'll be like in 2 hours never mind 2 days... do you have problems with this? It's really really getting me down especially with all my friends having bbq's and summer get togethers and I end up saying "Yay, cool " and having to get in touch to say sorry! can't make it this time.
Do you think there's any hope of some kind of miracle medical intervention ever happening to help with the HMS?