the biggest acheivement yet.

it has been 6 months since i was diagnosed with chronic fibromyalgia in that time i have worked so hard to get things in proper order with no help from any one but my husband he is my best freind i could not thank him enough for standing by me. all the research in the wourld does not compare to what i have been through as much help and support i was trying to get it did not change a thing this has been so awful in every single way i have no drugs to help with it i have been on paracetomol for 6months and i am glad that i cant go on them because as i have been told there is so many side effects in wich means nothing would ever get done in 6months my body has changed dramatically i was only married last august the shear devestation that it has on me stareing at pictures that i dont reconise any more.the good side is that in 6months i have acheived so much at times we have been so alone.we have not only been diagnosed by a hospital i received a blue badge also got a neurologist appointment also had been admitted to hospital as i had thee seizures in the doctors.i also get to see my consultant who deals with fibromyalgia and most of all had a visit from a doctor from d.l.a he was so destraught for me he even said that my photo of me was so diffrent he also said less than months was such a shock so today i had received my d.l.a one highrate and one middle this will change my life as i know that my old body has been taken over i am crippled with pain and have up to 8 seizures a day but yet i feel so sad that me and my husband had to do this all by our selves what i do know is that letting them see me for the way iam was the best way forward i was really releived when they said they would come to our home it changed every thing.it is our 1st wedding anaversary on 12th august and my life has been torn apart fighting every body deeling with what you have is just so devestating the change in my body is totally heart brakeing just shear torment but in betteen a smile or 2 being strong i even found breaks of laughter at times but more to the point i stuck to my guns and kept every body informed getting proof its all been hard but i am so glad that i have done what idid all this time i feel so proud of my self and to not have any medication makes my life a living hell . so i can say i can save up for my wheel chair.

[Ozzygirl64]

You are a strong lady and you should be proud of that. I was diagnosed a chornic sufferer 22 years ago, but had it 4 years prior to that. So like so many on here I know what you are going through.

It does take its toll and to make matters worse for me I was told I had COPD and so many other ongoing illnesses. I have what I call awake seizures, my body is seizing but I can see and hear, but not talk or stop it. I am used to that even though there is no warning.

Take from me hunni, the longer you have it the more you learn to laugh because you start to accept it for what it is, part of you.

XXXXX

[Angeldancea812]

I don't think we are ever prepared for this and the effect it has on us and we will keep fighting and trying to do more than we actually can. I am in a similar situation to you as the only help I get is from my ex- who has always remained my friend. I just hate putting so much on him, especially as I have reached a point where I don't like going out on my own.

[Hidden]

well done you deserved your success,with D L A .so happy for you.xx

[jillylin]

I am so glad you got your DLA. It won't alter your pain, etc but it will hopefully help make life a little more pleasant for you And what a great husband you have, he is definitely a 'keeper'.

Hugs

Jillyxx