*SENSITIVE* BFP but extremely high HCG - any experience?

[Sunshine92]

I had my 3rd frozen embryo transfer of a hatching embry on 24th February and was fortunate enough to get a BFP.

As a bit of reassurance while I wait for the viability scan at my clinic, I booked a beta HCG test at another clinic at 22DPT (5 weeks 5 days - 6 weeks pregnant). The results were off the charts at 64,700miu/ml, pretty much DOUBLE what they should be at 6 week pregnancy which I may be just on the cusp of.

Googling has brought up the possibility of multiples / molar pregnancy / cancers / high risk of downs syndrome, and naturally i am so worried. My clinic have booked me in for a repeat HCG tomorrow but I wish they’d just do a scan. They wont do one until 7.5 weeks.

Im so worried. Has anyone had abnormally high hcg?

[LovetoZumba]

honey….worry will get you nowhere. You will stress yourself out and that is not good for your baby. Celebrate your high HCG. There are sooh many variables on this journey and why would you focus on the what if especially worrying ones. Celebrate your pregnancy and switch your focus. The only place is joy. Leave Dr Google and go watch some lovely movies and talk to your (baby/babies) ❤️❤️

[Endofitall]

So sorry for all this worry. could you speak to your local EPAU for a scan now you’re 6 weeks (if you can’t convince clinic to do earlier). I would want this to put my mind at ease. Waiting to 7.5 weeks seems wholly unnecessary. Best of luck and let us know xx

[Whatwillbewillbe_]

it may be absolutely nothing to worry about but I can understand why you are worried. You can definitely insist on a scan at the NHS early pregnancy unit. Good luck x

[Brillanni25]

I don’t know anything about very high HCG but if you are worried you could book a private scan?

[Rjp518]

Hi,

I had a very high HCG and when the nurse called she said it was very high and I said what does that mean? Twins? And she insinuated she thought it would be. I would have obviously been elated but I was terrified and like yourself, googled it and found all these scary results. I was also wracked with anxiety.

Fast forward 9 months, I had a healthy singleton baby boy. Just had a very HCG.

That’s just my experience but hope it’s helped x

[Twiglet2]

my HCG was over 30k at 5 weeks with my son (and over 25k with my first too!) so would have been probably the same if not more than you at 6 weeks and was high at my NPT test for my 2nd son and did contribute to a high risk result (when combined with my age) BUT they took it as a really good sign and I asked 2 different consultants what it meant (after NIPT testing came back negative for downs) and they said it means nothing and not something they are worried about at all and some people just have higher HVG than others. For me on both pregnancies your levels were normal for me and a good sign (on my missed miscarriage they were lower but in ‘normal range’ which wasnt a good sign for me)

The other good thing about high HCG is that they should be able to see something on a scan about now and more likely to see fetal pole etc so you could get a wee private scan for about £60 somewhere local to check k yourself for peace of mind xx

[Sunshine92]

Thanks all so much ❤️

I had the blood test at my fertility clinic today as they requested. They were awful, told me i was 4 weeks pregnant not 5/6 (which I questioned as my last period was 7th Feb and I had a hatching 5 day frozen blast teanaferred on 24th Feb), wouldn’t listen. Especially as that would make my result even more concerning!

Told me not to google and the measurements the other clinic used weren’t what THEY use so they can’t comment. I said I understand, but it doesn’t take a scientist to convert and research the norma for that unit of measurement. Not at all understanding or supportive.

Ive also booked a private scan tonight to see. Will keep you updated. Thank you for sharing your advice and reassurance x

[Endofitall in reply to Sunshine92]

Good luck tonight. I’m sorry your clinic are being so unsupportive. 🤞🏼x

[Sunshine92]

*UPDATE: Had private scan, could see 1 viable pregnancy with fetal pole, yolk sac and flickering heartbeat measuring 5weeks 5 days. Reassured for now and can rest until next scan. I think i will go for NIPT though if we get that far.

Thank you again all x

[Weegran20 in reply to Sunshine92]

Congratulations 🥳 wonderful news ❤️

[Twiglet2 in reply to Sunshine92]

This is great news all looking good so far! I got the NIPT free on the nhs due to the combined screening coming back high risk (because of age and high HCG) so of you can hang off and your levels are still high by 12 weeks they may offer you the same, save a few £s and may not even be needed at all xx

[Endofitall in reply to Twiglet2]

Completely get what you mean but on the flip side if I ever get that far I’d much rather do it early at 10 weeks, I was planning to do this last year before we found out our pregnancy ectopic. Many of the women local to me are waiting to 13+ to have their dating scan and NHS combined test. For £500 I would feel the peace of mind earlier is worth it. Though I know that’s not cheap and everyone’s situation different xx

[Twiglet2 in reply to Endofitall]

Yeah defo absolutely can see that too for peace of mind 🫶🏻🤗 I spent so much on private scans for my anxiousness I didn’t even go down the stressing about trisomies route until my combined screening came back high risk! Or I probably would have spent the money earlier but was glad to take it for free xx