(sensitive mentions bfp) Looking for reassurance and thoughts on high?HCG….

[Nes1005]

Hello all

Hoping everyone wherever you are on journey is finding strength and hanging in there.❤️

A week ago we got a miracle bfp on what was planned to be last cycle with own eggs (I’m 44, eggs collected in May a week before 44th birthday). We’ve had a week of shock, terror over every possible outcome and anxiety is high because of the losses and failed ivfs we’ve had up until now.

My first HCG on Wednesday (15dp3dt) was 2702 and the second yesterday, Friday (17dp3dt) was 8815. I’d be grateful if anyone could share if they have had similar HCG numbers around the same time past transfer as I am panicking about them being too high. In 2022, at a 12 week scan my HCG was too high during the Trisomys tests and our Angel boy had Downs Syndrome. I know most ladies on here are worried about numbers being too low but the high numbers are triggering for me, never mind the thought of a scan in a weeks time. Grateful for anyone’s thoughts or to hear if your numbers were similar.

Thanks so much for reading, so appreciated. ❤️❤️❤️

[Ltry]

Hello! Sorry to hear of your previous loss. It must be such an anxious time for you. I don't have the same dates exactly but on 14dpt my HCG was 1900 (so the next day probably would have been around 2700). I didn't have another until a week later (so 21dpt) and that was I think around 35000. I had a healthy pregnancy and my little boy is now a thriving 11 month old current eating a cheese sandwich 😅

Fingers crossed for you!

[Nes1005 in reply to Ltry]

Thanks for taking the time to reply and thanks for your lovely words and wishes. Yes, having gone through multiple traumatic scenarios it’s hard to believe that everything will be okay but trying to go one day at a time at hope this time things will be different. Your message has made me smile, your little one has great taste in sandwich fillings!

❤️❤️❤️

[Ltry in reply to Nes1005]

Pregnancy after loss is so hard but try to remember this is a new pregnancy, a completely different little baby and there is every good reason for it to go well. I'm not sure if you have already spoken with someone but I wish I had sought counselling during my pregnancy. I spent the whole time so anxious and convinced it was going to go wrong. I had counselling afterwards but looking back I should have sought support earlier and maybe would have been able to enjoy the pregnancy a bit more.

Glad I could bring a little smile. He'll eat anything with cheese on it 😅

[Kitkat10]

mine was 1035 on day 12p5dt so prob similar to yours by day 15 🍀🍀

[Nes1005 in reply to Kitkat10]

Thanks for replying, Really good to know others have had slightly higher numbers early on. I’m currently stressing over how my numbers are high but I don’t have symptoms.. the worrying never ends!!!

[Kitkat10 in reply to Nes1005]

I had no symptoms until at least 6 weeks with both pregnancies 🍀🍀 then I had awful all day long sickness until 12 weeks which was reassuring but awful 😂😂

[Fruitandflowers]

Mine was more than doubling and looking at my numbers either side it would have been around 4000 at 14dp5dt. So even taking account of the 5d vs 3d it would have been around your original number. I did spend a lot of time looking at HCG ranges and doubling times online as my numbers seemed high and I thought it could be twins or a genetic issue. It wasn't either, and I now have a healthy 2yo. My second pregnancy I just took higher numbers and fast doubling I got again as a sign of strong development. But given your history I completely get that you have an added layer to consider. I hope the scan goes well and I'm not sure what else you do after that and before 12 week scan re genetic issues, maybe others on here have experience.

[Nes1005 in reply to Fruitandflowers]

Ah thanks so much for taking the time to reply. It helps to hear that others can have numbers on the higher side and tat it can still work out and I am not the only one. It’s really tough as in an ideal world I would see high numbers as reassuring as you mention but sadly I know what else on rare occasions it can mean. In all honesty, HCG numbers aside everything instills terror as last year at what should have been a 7 week scan, baby had no heartbeat, I think having had different types of losses, there’s nothing good to hold on to but I’m clinging on hour by hour and preying that this is a miracle.

Our hospital had said they would do various tests, NIPT etc early on any future pregnancies and I’d be under early care of foetal medicine, so that at least is reassuring when we get that far.

Thanks for taking the time to reply, honestly this forum is a lifeline along with my counselling , especially as we haven’t told anyone what’s happening.

My heart is with every single lady here battling through, keep going ❤️❤️❤️

[Fruitandflowers in reply to Nes1005]

I know - there was no reason for me to be worrying about the high numbers but I was. We'd had two early losses before that and I just assumed it wouldn't last. We then also had a later loss (a PUL) ending in surgery around 10 weeks, then a BFN. After that I fell pregnant naturally for the first time ever and my anxiety was through the roof as I was older, not on any meds, had been doing everything 'wrong' and I had horrible mental images of what they would say and show me at the first scan, then the 12 week, then the results of NIPT... I dreaded each of those milestones especially and on top of being anxious every day, and that's sad as those who haven't gone through this would be looking forward to them. Same with symptoms: cramps and pain = loss, no symptoms = loss, headaches and nausea mean HCG is high but is high HCG good or bad?... what about when the symptoms suddenly stop for a few hours or days? spotting is good, spotting is bad... that's just a snapshot of the little voice in my head and am sure it's the same if not worse for you. But I have just had my second healthy little girl. It can be ok x

[MVS22]

Hi, I was also worried when my HCG was 2054 13d5dt wondering if it could be too high. I had only had a chemical before and was expecting any BFP around the 100 mark (looking back now I'm not even sure why I came up with that number!)The clinic told me there can be a large range and mine was normal, she wouldn't even class my level as high, just normal range. That did make me feel better and I didn't have anymore tests, HCG or FRER as I didn't want to create any further anxiety in myself.

I know we never want to get ahead of ourselves on this journey, just think you are one step closer. It has to start somewhere! Wishing you the best for your scan!

[Nes1005]

Thanks for your reply, your number was very similar to mine. I’ve had low with a chemical too, and of course too too high which in the ended very sadly. But as you say the number has to start somewhere and the fact it doubled and went up is something to hang on to. Waiting for the scan is just agony, I’m not sure how I will get through, but all of us ladies here just do- we have to find the strength don’t we. ❤️❤️❤️

[Skittles11]

Wishing you gentle congratulations. I understand your fears, we've chatted before and I lost my baby to Trisomy 18 at week 15 so I totally understand all of the fears that are coming up for you and all of the triggers you are facing. I saw on another post that you had your scan later and I didn't want to hijack that post so also came on here to wish you lots of good luck x x

[Nes1005]

Hello

How are you doing?

Yes I remember our chats from before, it’s so nice to hear from you. Everything is. Beyond triggering at the moment, and today is an absolute mess, myself and my partner are despairing because all my symptoms have dissapered yesterday, so I am sure there won’t be a heartbeat at the scan today. The same thing happened last year when I had a missed miscarriage. I honestly don’t think I can take anymore…I’m sitting on the floor supposed to be working from home and just crying into my laptop. it’s still so hard and painful even after a miracle positive test.

And I just miss my little boy so much, myself and my partner were looking at his photos yesterday wishing we could have one more minute with him, it just never goes away does it..

thanks so much for your kind words and thoughts, it really means the World that you took the time to message, it’s so hard carrying all this and not being able to share with friends, support from all the wonderful women on the forum is a godsend.

xxxx

[Skittles11 in reply to Nes1005]

Going through the trauma of losses, especially with multiple losses and / or late losses, really does make you question EVERYTHING. We carry the trauma around with us and the anxiety is very real. It's a hard place to be in with so many triggers and worries every minute of every day. I get you. I can only say that symptoms can come and go and are not always the true representation we expect, but I have been there and I know that I have worried about the exact same thing. Am keeping everything crossed for your scan and would love to hear how it goes if you feel you would like to share x x

[Nes1005 in reply to Skittles11]

Thanks so much, your message has made me cry, mainly because I know you understand- we’ve both suffered different multiple losses and of the cruelest kind. I wish I didn’t know my body so well but sadly after all I have experienced, I can feel when something changes. Prey to God, I can be wrong on this occasion.

I’ve just been catching up with your posts, so many congratulations to you, how wonderful to have a natural miracle, and so very deserved. I can see in your posts you have the same worries but you are on your way to a happy ending I am so sure. Sending so much love to you and your growing little one, it’s wonderful.

Thank you again for your kindness and I will share the outcome, it’s good to have people rooting for you. ❤️💙

[Skittles11 in reply to Nes1005]

I understand and relate to every word you say and will be keeping everything firmly crossed for you for today. X x

[Nes1005 in reply to Skittles11]

Hello,

Hope all is going well and smoothly on your little journey❤️

Just a little note to say, we had our scan on Monday and got amazing news but coupled with not soo good news…which has taken its toll. We are blessed to have seen our little miracle with a heart beat, measuring correctly at 6w2d. Sadly what we also were ‘Sub Chorionic Bumps’ …I had never heard of them until the scan. It’s a blow, especially as the condition is so rare so we are a bit in the dark and there is very little info out there..This means we have go straight into feotal medicine next week which takes me back to two years ago and the trauma of that time. I feel so unlucky that this has happened, I don’t think there isn’t an issue my uterus hasn’t thrown up along this journey but I amtrying to hold onto the fight that I put into just getting through this last cycle, there’s been hurdle after hurdle, mentally, physically and financially so I’ve got to fight on for our little miracle and prey he/she can beat these ‘bumps’. Hopefully things will still be okay at the scan next Thursday with feotal medicine.

Sending so much love and light, peace and best wishes to all the extraordinary ladies here battling through. I’m with you all.❤️❤️❤️

[Skittles11 in reply to Nes1005]

Hello Lovely to hear back from you and thank you for sharing your update. It is really positive that measurements are bang on and heartbeat was seen, this is so encouraging.

But I also know it must be really scary at this moment but hopefully Fetal Medicine will be able to shed some additional light on the issue. Did your clinic staff give you any info at all, is it similar to a sub chronic haematoma as this is something I have heard of. Going through what you've been through you just want everything to be perfect and not throw up any additional things to worry about, because the harrowing memories of what has gone before constantly strikes and triggers the anxiety. I really hope that this is just a minor setback. Being looked after by Fetal medicine is also beneficial as you are being cared for by the experts so I hope you can take some comfort in that. X x