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(sensitive mentions bfp) Looking for reassurance and thoughts on high?HCG….

Nes1005 profile image
11 Replies

Hello all

Hoping everyone wherever you are on journey is finding strength and hanging in there.❤️

A week ago we got a miracle bfp on what was planned to be last cycle with own eggs (I’m 44, eggs collected in May a week before 44th birthday). We’ve had a week of shock, terror over every possible outcome and anxiety is high because of the losses and failed ivfs we’ve had up until now.

My first HCG on Wednesday (15dp3dt) was 2702 and the second yesterday, Friday (17dp3dt) was 8815. I’d be grateful if anyone could share if they have had similar HCG numbers around the same time past transfer as I am panicking about them being too high. In 2022, at a 12 week scan my HCG was too high during the Trisomys tests and our Angel boy had Downs Syndrome. I know most ladies on here are worried about numbers being too low but the high numbers are triggering for me, never mind the thought of a scan in a weeks time. Grateful for anyone’s thoughts or to hear if your numbers were similar.

Thanks so much for reading, so appreciated. ❤️❤️❤️

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Nes1005 profile image
Nes1005
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11 Replies
Ltry profile image
Ltry

Hello! Sorry to hear of your previous loss. It must be such an anxious time for you. I don't have the same dates exactly but on 14dpt my HCG was 1900 (so the next day probably would have been around 2700). I didn't have another until a week later (so 21dpt) and that was I think around 35000. I had a healthy pregnancy and my little boy is now a thriving 11 month old current eating a cheese sandwich 😅

Fingers crossed for you!

Nes1005 profile image
Nes1005 in reply to Ltry

Thanks for taking the time to reply and thanks for your lovely words and wishes. Yes, having gone through multiple traumatic scenarios it’s hard to believe that everything will be okay but trying to go one day at a time at hope this time things will be different. Your message has made me smile, your little one has great taste in sandwich fillings!

❤️❤️❤️

Ltry profile image
Ltry in reply to Nes1005

Pregnancy after loss is so hard but try to remember this is a new pregnancy, a completely different little baby and there is every good reason for it to go well. I'm not sure if you have already spoken with someone but I wish I had sought counselling during my pregnancy. I spent the whole time so anxious and convinced it was going to go wrong. I had counselling afterwards but looking back I should have sought support earlier and maybe would have been able to enjoy the pregnancy a bit more.

Glad I could bring a little smile. He'll eat anything with cheese on it 😅

Kitkat10 profile image
Kitkat10

mine was 1035 on day 12p5dt so prob similar to yours by day 15 🍀🍀

Nes1005 profile image
Nes1005 in reply to Kitkat10

Thanks for replying, Really good to know others have had slightly higher numbers early on. I’m currently stressing over how my numbers are high but I don’t have symptoms.. the worrying never ends!!!

Kitkat10 profile image
Kitkat10 in reply to Nes1005

I had no symptoms until at least 6 weeks with both pregnancies 🍀🍀 then I had awful all day long sickness until 12 weeks which was reassuring but awful 😂😂

MrsOrangejuice profile image
MrsOrangejuice

Mine was more than doubling and looking at my numbers either side it would have been around 4000 at 14dp5dt. So even taking account of the 5d vs 3d it would have been around your original number. I did spend a lot of time looking at HCG ranges and doubling times online as my numbers seemed high and I thought it could be twins or a genetic issue. It wasn't either, and I now have a healthy 2yo. My second pregnancy I just took higher numbers and fast doubling I got again as a sign of strong development. But given your history I completely get that you have an added layer to consider. I hope the scan goes well and I'm not sure what else you do after that and before 12 week scan re genetic issues, maybe others on here have experience.

Nes1005 profile image
Nes1005 in reply to MrsOrangejuice

Ah thanks so much for taking the time to reply. It helps to hear that others can have numbers on the higher side and tat it can still work out and I am not the only one. It’s really tough as in an ideal world I would see high numbers as reassuring as you mention but sadly I know what else on rare occasions it can mean. In all honesty, HCG numbers aside everything instills terror as last year at what should have been a 7 week scan, baby had no heartbeat, I think having had different types of losses, there’s nothing good to hold on to but I’m clinging on hour by hour and preying that this is a miracle.

Our hospital had said they would do various tests, NIPT etc early on any future pregnancies and I’d be under early care of foetal medicine, so that at least is reassuring when we get that far.

Thanks for taking the time to reply, honestly this forum is a lifeline along with my counselling , especially as we haven’t told anyone what’s happening.

My heart is with every single lady here battling through, keep going ❤️❤️❤️

MrsOrangejuice profile image
MrsOrangejuice in reply to Nes1005

I know - there was no reason for me to be worrying about the high numbers but I was. We'd had two early losses before that and I just assumed it wouldn't last. We then also had a later loss (a PUL) ending in surgery around 10 weeks, then a BFN. After that I fell pregnant naturally for the first time ever and my anxiety was through the roof as I was older, not on any meds, had been doing everything 'wrong' and I had horrible mental images of what they would say and show me at the first scan, then the 12 week, then the results of NIPT... I dreaded each of those milestones especially and on top of being anxious every day, and that's sad as those who haven't gone through this would be looking forward to them. Same with symptoms: cramps and pain = loss, no symptoms = loss, headaches and nausea mean HCG is high but is high HCG good or bad?... what about when the symptoms suddenly stop for a few hours or days? spotting is good, spotting is bad... that's just a snapshot of the little voice in my head and am sure it's the same if not worse for you. But I have just had my second healthy little girl. It can be ok x

MVS22 profile image
MVS22

Hi, I was also worried when my HCG was 2054 13d5dt wondering if it could be too high. I had only had a chemical before and was expecting any BFP around the 100 mark (looking back now I'm not even sure why I came up with that number!)The clinic told me there can be a large range and mine was normal, she wouldn't even class my level as high, just normal range. That did make me feel better and I didn't have anymore tests, HCG or FRER as I didn't want to create any further anxiety in myself.

I know we never want to get ahead of ourselves on this journey, just think you are one step closer. It has to start somewhere! Wishing you the best for your scan!

Nes1005 profile image
Nes1005

Thanks for your reply, your number was very similar to mine. I’ve had low with a chemical too, and of course too too high which in the ended very sadly. But as you say the number has to start somewhere and the fact it doubled and went up is something to hang on to. Waiting for the scan is just agony, I’m not sure how I will get through, but all of us ladies here just do- we have to find the strength don’t we. ❤️❤️❤️

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