Trying to process everything

[Penguinw21]

Having spoken to IVF nurse yesterday she has confirmed that we need to do IVF as quick as possible as at 33 my AMH is only 1.5 pmol/l so v v low for my age. Sperm from my OH is also lower on all 4 parts so we've been told we need ICSI.

Been told the likelihood of IVF working is between 12 and 19% each cycle yesterday and feeling so deflated tbh.

We have only been TTC for a couple of months so to have to go straight to IVF feels petrifying 😔

We are only at the start of our journey but it's looking like a long road ahead 😬

[JustJane1234]

Hey. I'm really sorry you're going through this. I had similar news at 32 when I was told my AMH was 0.4 and I really struggled to come to terms with it. Take good care of yourself (and each other) over the next few months. I would recommend speaking to a fertility counsellor too - your clinic should be able to facilitate this.

To put things in perspective a little, 12-19% actually isn't that low and indeed isn't much lower than the average success rate per cycle, which is about 32% for women your age according to the NHS. So it's definitely worth a shot!

Fingers crossed IVF will work for you quickly but yes, I'm not going to lie, it could be a long, hard road ahead. I'd like to say to take some time to let the news sink in but I appreciate that's the last thing you'll want to do if you hope to conceive with your own eggs.

Wishing you lots of luck xx

[Penguinw21 in reply to JustJane1234]

Thank you so much for your lovely message in reply. What measure was your AmH at 0.4 was that ng/ml or pmol/ml?

I think speaking to a counsellor sounds like a very good idea so think I'm going to look into that 👍 I'm only 1 month into a new job right now so it's not good timing but know that work has to come 2nd to this right now before my fertile window closes!

We would love to do IVF with my own eggs but been told that a donor egg may be needed. I have an identical twin sister so she would be perfect for donation but they think she will have the AMH low score too 🤔

I'm feeling some days optimistic and others I just cry a lot. I think we have come to terms with doing 2 rounds of IVF privately whilst waiting for the NHS and luckily we have savings to do that (as the house repairs have been put on hold)!

I'm scares that 2 rounds won't be enough and then we will run out of money, and we've also been told that some NHS areas won't give IVF to us with my AMH so low 😢

What's your experience of fertility so far if you don't mind me asking? Xx

[ForABabyPanda]

this makes me a little angry (although what doesn’t these days as you’ll see from my previous posts) as my AMH is 0.9 at 37 and that’s still really quite low. No-one told me this, they said it was okay (in nhs tbey really seem to be just telling you if ivf has a possibility of working g and not whether low AMH could be a cause of infertility so in obviously still in the range that ivf could work, but it wasn’t made clear to me that I was low - I had to work this out myself.

[Penguinw21 in reply to ForABabyPanda]

Is your AMH 0.9 ng/ml or 0.9 pmol/ml?So sorry to hear you've been angry and sorry for adding to that.

We paid for private fertility tests so I don't know what the NHS would have told us about my results if we had gone through them. How has your IVF and fertility journey gone so far? X

[ForABabyPanda in reply to Penguinw21]

oh I can’t remember which way round but it’s 12 in one scale and 0.9 in another if that’s helps? My journey hasn’t gone amazingly so far - 2 embryos transferred that failed in nov, still waiting on FET.

[ForABabyPanda in reply to ForABabyPanda]

don’t be sorry for making me more angry, it wasn’t you at all, just so much I realise i haven’t been given pertinent info etc.

[HollyT7]

When you think about it, percentages are all 50/50, you’re either in the lucky half or you’re not. It’s easy to get hooked up on numbers, you just need to focus on moving through this hand you’ve been dealt and put your energy into every single step. The ball is rolling and your on your way, so all the best for all of this, you can do it xxxxxxx

[Penguinw21 in reply to HollyT7]

Aww thanks so much. When you're getting quoted a LOT of negative statistics it's really hard not to get hung up on the numbers but I appreciate you saying to try and view it as 50/50 always.

My brain keeps telling me that naturally trying is "obviously" going to work but that's because we weren't TTC before all this news 😬

I try not to get down about it but I'm still very much in the stock stages and time isn't on our side to just sit back and take it all in so it's all go go go! We've got 2nd opinion tests early April and consultation mid April so then will sign up to ICSI as soon as we can after that and keep everything crossed it works 🤞🤞

Thanks so much and I've read your profile and LOVE your positive journey that's so nice to hear xxx

[HollyT7 in reply to Penguinw21]

numbers are the worst and it’s by no means all a walk in the park but I hope this forum gives you the hope, friendship and virtual hugs that you need to get through. my main advise would be to be kind to yourself and even on your darker days, don’t loose hope ❤️

[Gerbear22]

Hi there. I know it’s hard but don’t feel deflated.We were only given a less than 10% chance of it working for us and I am currently 32 weeks pregnant after our second ivf cycle.I am 40 with low ovarian reserve, endometriosis and under active thyroid.Age is on your side!!x

[Penguinw21 in reply to Gerbear22]

Thank you so much for your comment it's amazing to hear your success story and massive congratulations to you and your little one due soon 🥰

Age is definitely on my side now we just have to wait and keep everything crossed 🤞🤞 xx