**** UPDATE***Ectopic 💔 My suspicion... - Fertility Network UK

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**** UPDATE***Ectopic 💔 My suspicions were confirmed this morning.

Violet1987 profile image
36 Replies

Hi folks my hcg levels are just 5000!!! I’m being taken for surgery immediately. Thanks for all your love and support. Think I’m in shock now as the tears have stopped.

Hello everyone,

Thank you for the yesterday however, my little lambie has implanted next to my ovary (they think) absolutely devastated and keep crying. I swear everyone at the hospital probably thinks I need sectioned 😭 does anyone have any experience of an ectopic? What do I need to expect? I suppose it’s good they’ve found it early as I’m only due to be 5-6 weeks xxx

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Violet1987 profile image
Violet1987
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36 Replies
Cinderella5 profile image
Cinderella5

Awww Violet, Im so very sorry to see your update! I have no experience of ectopic personally so no advice....thinking of you both.xx

Violet1987 profile image
Violet1987 in reply to Cinderella5

Thank you for your support. Your posts always inspire me as you’re a very strong and amazing woman. You are going to be the best mum to your twins xxxx

Cinderella5 profile image
Cinderella5 in reply to Violet1987

Awww thanks Violet, that's really kind! However, you are stronger than you know.....takes a lot of guts and determination to do IVF. Hopefully once you have recovered physically and emotionally you can find the strength to carry on!! Look after yourselves and be kind to each other.xx

PurplePiggie profile image
PurplePiggie

Don't have any advice I'm afraid, but just wanted to say so sorry to hear this, thinking of you, sending lots of love 😘 x

Violet1987 profile image
Violet1987 in reply to PurplePiggie

Thank you! Xx

Linda84Co profile image
Linda84Co

I’m really sorry. This is not something that I have experience with but I had a few miscarriages before, so I know how you must feel... it’s devastating and I wish I could say something and change how you feel... Im praying for you♥️🙏🏼

Violet1987 profile image
Violet1987 in reply to Linda84Co

Thank you! I’ve managed to miraculously refocus my attention in a book while I recover. If I allow my mind to think of what I’ve been through I just breakdown xx

AllWeNeedIsluv profile image
AllWeNeedIsluv

Sending you a gentle hug. Im so sorry my love. Take good care of yourself. I've no experience of ectopic. Bless you. Sending lots of love💗😘

Violet1987 profile image
Violet1987 in reply to AllWeNeedIsluv

Thank you xx

Orla9298 profile image
Orla9298

I’m so, so very sorry, I’ve recently gone through this and it was right by my ovary too, the very top of my tube. I was 6w3 days I think, and it was bleeding and ready to rupture so I had to have surgery. The only time we managed a heartbeat so I was devastated.

If it had been earlier then I could have had the injection to halt the pregnancy, which initially I thought would have been preferable. But when they opened me up that tube was a mess so it was a good job they looked inside and took my tube as it would have only happened again.

You’ll be in total shock at this point, I certainly was. If you need to talk feel free to message me.

You’ll just need support and love from your nearest and dearests at the moment but if I can help then let me know.

Lots of love xx

Violet1987 profile image
Violet1987 in reply to Orla9298

What a shame, I feel gutted for your loss. They didn’t pick up a heart beat this morning.

Thanks, once I get an update I might private mail you if I’m left with questions xx

Nat246 profile image
Nat246

Hi Violet. Sorry to hear it’s ectopic. I’ve sadly had two ectopics. Treatment will depend on how well the pregnancy has progressed. methotrexate (a drug) might be possible, or it will be surgery (usually key hole). Unfortunately a progressing ectopic can often cause damage, so make sure you find out this and if any ovary/Fallopian tube will need to be removed as well. Thinking of you, ectopic pregnancy loss is particularly scary. Also if you do need surgery, be prepared to be asked afterwards what you want to do with the pregnancy tissue (some people want it and bury it). I’ve found they ask this without any sensitivity and it really shocked me, so I wanted to give you a heads up, although it is horrible to think about xx

Violet1987 profile image
Violet1987 in reply to Nat246

Hi, can I ask if your ectopic was from IVF? Xx

Nat246 profile image
Nat246 in reply to Violet1987

Hi violet, neither ectopic was from IVF. They were both natural conception but they caused so much damage I then needed IVF. I’ve had two rounds of IVF since then and no further issues with ectopic pregnancies (so far anyway) xx

Ivfgotadream profile image
Ivfgotadream

Ive had 2 ectopics sadly both ruptured as were tubal and had heartbeats so Tube couldn’t be saved.

Depending on your hcg levels they’ll likely offer you methotrexate - this is a drug more commonly used to treat cancer so can make you feel pretty crappy for weeks after. Also means you MUSNT get pregnant for 3 months afterwards as a side effect is it basically removal folic acid from your body and so you risk birth defects in a new pregnancy (or 6 months if you get 2 injections)

The maximum hcg level they’ll give MTX in the U.K. is 5,000 below that you’ve got a pretty good chance of it working (my level was 5,000 for my first ectopic but agreed to try it but it didn’t work)

The drug is often administered on the cancer ward so be prepared for that. It’s normal for hcg to continue to rise for Up to 4 days after the shot but then they should fall and a hospital will monitor your levels until they reach zero

As your ectopic is on the ovary if they do have to operate bear in mind they’ll likely have to remove the ovary so be prepared mentally for that also.

I had my second ectopic with no MTX in the July and did another egg collection in the September in case you were thinking ahead IVF wise.

Chances of having another ectopic do increase once you have had one. Also IVF also increases chance of having an ectopic (my second ectopic was an IVF transfer). Having a double transfer also increases the risk again - I know a lot of info there but what helped me get through it was making plans for the future x

Violet1987 profile image
Violet1987 in reply to Ivfgotadream

Thank you for this information. I’m devastated but I guess I knew deep down something wasn’t right about this transfer. I was just so desperate for this baby to be real.

The way I feel just now, I’m not sure if I will go back for treatment. A miscarriage and now this has really knocked my confidence.

I hope to hear what they are going to do soon xx

Sas1101 profile image
Sas1101

I'm so sorry Violet 💔 I don't have any experience but wanted to send you a big virtual hug. X

Violet1987 profile image
Violet1987 in reply to Sas1101

Thank you xx

Patches86 profile image
Patches86

Hi violent, firstly I’m so sorry, it’s such a heartbreaking experience. I had an ectopic in July, I was 6w3d when I found out. My clinic initially monitored my blood levels, then with rising hcg I tried the methotrexate injection, which didn’t work for me and eventually led to my tube rupturing and I had surgery to remove it. Please feel free to reach out with any questions or just for support!

fay2399 profile image
fay2399 in reply to Patches86

Ah dear! So many sad stories! I had methotrexate for 4 months and I know how hard is the wait for a year :(

Violet1987 profile image
Violet1987 in reply to Patches86

Thank you. I wasn’t offered the injection as they felt it wasn’t going to work. I’m out of surgery without a tube. Hardly slept because they keep having to do checks but I’m sure you’ll remember all this too. I’m back to crying a lot as the nurses are being too nice. I feel like such a failure and embarrassed because 4 of my close friends and family members are all pregnant (some with ivf) and here is me sitting in the hospital having to have surgery because my wee baby never managed to implant in the right place. Devastated. Sorry for the mini emotional rant but I just hate my body xxx

Beatrix_K profile image
Beatrix_K

I'm so sorry to read this Violet, you poor thing. I just wanted to send you lots of love - let those tears out, don't worry about anyone else. The world sucks sometimes and you're allowed to cry. xxx

Violet1987 profile image
Violet1987 in reply to Beatrix_K

Thank you! Xx

Oh wow sorry to hear that I wasn’t expecting you saying ectopic good job you got checked out. Look after yourself. Xx

Violet1987 profile image
Violet1987 in reply to

Thank you! It’s funny but I’ve had a gut feeling since the late positive test this pregnancy wasn’t quite right. But there is always that strong fire of hope in us all. I was desperate for the wee blastocyst to work xx

Egilbertpatt profile image
Egilbertpatt

Lots of love to you...I've no experience with ectopic but my Cousin had one and took a week or so to recover physically but obviously mentally takes far longer. I think you're right the earlier the better for treating the situation and I know it can be very serious if they don't spot it early Sending you a virtual hug, must be so hard after coming this far 👐 xx

Violet1987 profile image
Violet1987 in reply to Egilbertpatt

Thank you! Xx

Abs37 profile image
Abs37

I’m so sorry Violet 💙 I had an ectopic found at a private scan - I thought I was 11 weeks but they think I was a little further. I lost a fallopian tube with it. I think it was so unexpected (I was lucky enough to have no pain/symptoms) and shocking for us it took me a long time to recover emotionally. It’s trite to say but it’s so important now to be kind to yourself, ectopic are so cruel. Thinking of you xxx

Violet1987 profile image
Violet1987 in reply to Abs37

Aww my heart goes out to you! Thank you for the information, it definitely makes me feel a lot less lonely this evening xx

fay2399 profile image
fay2399

Oh so sorry! Was it ivf or natural? Hope you be ok soonxx

Violet1987 profile image
Violet1987 in reply to fay2399

Hi, this was an IVF baby. I’m feeling so sad as I was desperate for this baby to be ok xx

fay2399 profile image
fay2399 in reply to Violet1987

I know how you feel.I hope u heal soon and be positive.

Ivfgotadream profile image
Ivfgotadream in reply to Violet1987

So sorry to see your update, take care of yourself during this time, hopefully you’ll be home tomorrow so you’ll have your partner there to support you xx

Lots8788 profile image
Lots8788

So sorry lovely. Massive hugs and lots of love to you xxx

Violet1987 profile image
Violet1987 in reply to Lots8788

Thank you xx

lou12208 profile image
lou12208

Violet. im so sorry to hear this. Keep strong, sending you a big hug. x

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