How do you cope with PGD IVF failing!?

[Sarah1575]

Hi, I’m new on here. Just struggling so much with the whole experience and feel increasingly isolated, like no one understands.

My husband was diagnosed with Huntington’s disease 4 years ago and we have been trying to get pregnant ever since. Not wanting to pass the gene on (as there is a 50/50 chance) we began by trying to conceive naturally with the view to undergoing CVS at 11 weeks. After 18 months of trying, we still weren’t pregnant. After numerous fertility tests, we were told there was nothing wrong with us; just ‘unexplained infertility’.

We then embarked on the PGD IVF journey. Our first round resulted in 2 healthy embryos that were unaffected. Implantion 1 was unsuccessful. Implantation 2 was successful! For the first time in 4 years, I was staring at a positive pregnancy test result!!! However, at 7 weeks, all of my symptoms started to disappear so I did 3 more pregnancy tests- all were negative!

Finding it really difficult to come to terms with. Feels so unfair. And there just seems to be babies, pregnant people and families EVERYWHERE!! And the thought of going right back to the start again...

How do you all cope?

[Frogmore12]

Hi Sarah

It’s so so hard and u are doing an amazing job sorry to hear of your journey.

I had a miscarriage at Christmas second round of IVF it was so tough, I felt a Failure less of a woman it was really tough to deal with. I felt the same as you it was so unfair everyone around me has children or falling pregnant.

I always wanted 2 children but I got to the point now I don’t care I just want one healthy child.

We had our transfer last Wednesday and I’m just praying this time it works.

Also remember you are doing amazing.

We are a special group of women who are going through this journey not all super hero’s wear capes, life is not easy and only the toughest can deal with this journey and not everyone could deal with all the medication injections, you are strong and keep focus u hopefully will get there don’t give up.

Sending u love 💓 x

[Sarah1575 in reply to Frogmore12]

Thank you for your reply. I’m so sorry you’re going through it but it really does help hearing your thoughts. They sound so similar to mine. I too always thought I’d have 3 kids and the house would be noisy and crazy (I am one of 3). I never dreamed I would have an only child... now that’s all I want!!! My 2 best friends have 3 kids between them and got pregnant straight away as soon as they started trying. I find the ‘unfair’ feeling one of the worst to deal with. I can end up feeling so bitter and then just want to avoid speaking to or seeing them 😔

I have everything crossed for you that this transfer is successful 🤞🏼 Like you said, we are very strong women and not everyone would be able to keep going 💪🏼 Xx

[JoP32]

Hi Sarah. I’m so sorry you’re going through this. Miscarriages either with or without ivf are devastating.

For me this forum has been a HUGE source of comfort and strength & since joining I’ve stopped feeling so alone. The amazing ladies on here are all so supportive and they (we) - truly understand how tough this whole process is.

If you need a pick me up - post on here. If you’re feeling particularly blue - post on here. If you just want to have a rant - post on here.

We’re here for you anytime. Xxx

[Sarah1575 in reply to JoP32]

Thank you so much for your reply. You sound so strong 💪🏼! Reading the info in your bio, I just have so much respect for you- you’ve been through, and continue to go through, so much. I am just at the start really, but it makes me feel that I’m not alone and there are so many people taking this journey and however long it takes I guess you just have to continue to keep going... what else can we do!?? Giving up is not an option xx