Intralipids. Where to do them with a low cost?

[Crista240411]

Hi

I will be starting on my next period my 6th cycle and I need to have intralipid infusions again. I had these before with my UK clinic at £250 each. Now that I'm going abroad for our embryo transfer I was wondering if someone knows clinics or nurses that would do these cheaper? I'm based in milton Keynes

Thanks everyone!

[KiboXX]

The only place I know of is Bourn Hall but the cost is the same unfortunately.

Did you find them worthwhile?

[Crista240411 in reply to KiboXX]

Thanks. Well the only positive I got was when I had them and prednisolone, although sadly I miscarried at 12 wks. Si I think they are worth it when one is diagnosed with natural killer cells... but they are sooo expensive....

[KiboXX in reply to Crista240411]

Ah I see. Sorry for your loss. Yes they do seem crazily expensive. Hope you manage to find somewhere that is more reasonable!

[Fingerscrossed38]

Gosh £250 is cheap. I'm paying £495 a pop for mine! Were you doing yours in London? I'd loss to find a cheaper place to do it. I'm guessing the quality and dilution would be the same?

[KiboXX in reply to Fingerscrossed38]

Bourn Hall Cambridge was £250 x

[Crista240411 in reply to Fingerscrossed38]

And I did mine in Care Northampton if that suits you best

[Sarah83ap]

I’m having to have these in Essex and they are 250 a pop. I think this is adv price... I’ve never had them before but only just found out I have NKC so hoping they work.

How did you find them?

[Crista240411 in reply to Sarah83ap]

I think they really worked for me, together with prednisolone. The whole thing was very easy and I actually found it very relaxing laying on the bed until the bag finished! 😉

[Sarah83ap in reply to Crista240411]

Thank you! Goof luck with your next round! Xx

[Sazzle18]

Hi Crista

I’ve just finished having them with bourn hall and they are currently £375 they have gone up £25 this year I got a shock when I payed on Monday for my last one. I’ve had 4 over the last 4 months. Xx

[Crista240411 in reply to Sazzle18]

It really does feel that they are milking this 😤🤬

[Sazzle18 in reply to Crista240411]

I would love to find out what their mark up is on them. Or what the cost to produce them is.

[Cinderella5]

Im not sure if London is an option for you but this company used to do intralipids(not sure if they still do) and you'd need a prescription from your clinic but its perhaps worth a try. Independent Nursing Services 020 7580 9442. They seem to have an online booking system too.

timendo.com/independent-nur...

[Crista240411 in reply to Cinderella5]

Many thanks. I will try them as I just got a quote from a clinic in London that is supposed to work with my clinic in Czech republic and they also charge £250

[Cinderella5 in reply to Crista240411]

Its so flipping expensive isnt it, they really do take the mickey so bad in the UK. Its costs a fraction of this overseas! I usually have an infusion when Im over for embryo transfer which is worth doing too. If you have any nursing friends that can put in cannulas they could do it for you too. I struggle to find anyone that will do them in Scotland at all! Good luck.xx

P.S Prestige nursing is another one that may do this for you as I know others have used them but may depend on where you live and I think you would need to get your intralipids prior too.xx

[Crista240411 in reply to Cinderella5]

Many thanks hon!

[Ivanova in reply to Crista240411]

Hello.

can i ask what clinic do you use in London ?

Thanks

[Crista240411 in reply to Ivanova]

Hi, in the end I found a place that suited me better and with a lower cost, but it wasn't in London.

PM me if you want any details

[Flora14]

Hi can I ask what tests you had for killer cells?I am about to have my 5th cycle but no one will test me for killer cells or give me steroids x

[Crista240411 in reply to Flora14]

Of course!

I went through my paperwork and found the descriptions. The circled ones where the ones recommended to me. The cost was £2k and it was a 4wk wait.

This was after my 3rd failed cycle and the clinic actually pushed for it. I did have the same symptom though in every failed cycle until then, which was that I felt really ill on the 2nd day of the transfer. It could have been 40 degrees outside and I was trembling and feaverish. Turns out this is a classical symptom of raised NPK cells, as the body fights of what it thinks it's a threat

Steroids are really risky and as far as I know no one will prescribe them unless they have solid evidence that you need them. I do find it very strange though that they are reluctant to test you...

PM me if you have any other questions hon.

[Flora14 in reply to Crista240411]

2k to test for killer cells?that's crazy.my consultant doesn't believe in it so won't test and nor does another consultant I've seen actually so no one is helping me😣you said about circling something?have you sent me something?I can't see if so.lol sorry x

[Crista240411 in reply to Flora14]

Yeap! Pricy stuff... my bloods were sent to the USA as apparently that's where they do this testing.

Sorry forgot to attach the photo before..and I'm trying to work out how to do it now

Can't see how I can attach. . There is no option for that I think...