Losing post

[Mini79]

Hello please can anyone help . I have had 10 miscarriages and going through another one and have had 1 still birth . All my bloods and tests come back normal but I always seem to lose the baby at 5 week plus always saying baby stopped growing and no heartbeat. Why is this happening I dont know . I am 40 years old and hubby 42 . I am losing hope now . This pregnancy was ivf first cycle and the worst ever miscarriage I'm going through . Please can someone help . I do not have time on my side .

[Tugsgirl]

I’m truly sorry for all of your losses. I can’t begin to imagine how you feel even though I lost three pregnancies myself. I’m so saddened for you.

I would ask for a repeat on all bloods. Unless they’ve already been checked more than once. My initial tests came back normal but subsequently on repeat tests came back abnormal. I truly hope that you can get to the bottom of this. Wishing you a much happier 2020 xx

[Mini79 in reply to Tugsgirl]

Thank you for your post. I really hope I do get answers as none of the consultants can tell me either . My bloods were all normal . I pray the new year will bring me good luck.

[Bluelady-sing]

Have you been referred to recurrent miscarriage clinic

[Mini79 in reply to Bluelady-sing]

Hello blue lady

Yes I have and they were absolutely rubbish wasted 3 years of my life where u live .

Referred my self to st Mary's hospital in london who specialise in recurrent miscarriage they told me I have a heart shaped uterus so they did a hystrescopy on me to round it off .

Gonna see the director of the recurrent miscarriage clinic in February so hopefully get some answers . Just waiting game waiting for appointments.

[Bluelady-sing]

The fertility clinic might help

[Hope4another]

I'm so sorry, I hope you get some answers xxx

[GPmum]

So sorry for your loss...

I feel you, cos I had 2 implantation failures before and I'm 42.5 now so I understand about time not on our side.

When I pushed my doctors to give me comprehensive blood tests, I followed the advice from the IVF book by Zita West, an IVF clinic in London, that often the culprit for implantation failures and MCs can be the autoimmune disorder and/or blood clotting issue (e.g. MTHFR mutation) on the mother-to-be's body so I'd suggest buy this book (can find in amazon) and ask (can be a GP) for prescription of blood tests e.g. if you have over abundance NK (natural killer) cells, anti nuclear and anti cardiolipid and anti phospholipid and anti TPO antibodies, because NK cells and some antibodies can attack the embryo(s) considered as foreign tissue as with IVF it/they were transferred from outside.

I myself was discovered to have 2 autoimmune disorders that may explain the previous 2 implantation failures: Hashimoto (so my antibody was attacking my thyroid and of course this caused hormonal imbalance) and existence of 1 type of anti nuclear antibody and the meds I had to take aren't complicated: only thyroid hormone and aspirin 100mg during the whole pregnancy.

It's true also that the Zita book said that it can also be due to the issues in the uterus e.g. having scars in the uterus maybe due to myomectomy done before, etc. so it's good you had hysteroscopy, I even didn't have this even tho my 1st RE knew I had myomectomy in '10 *sigh*

Hope you found a clinic/specialist that can help you to find the answers and remember we need to be our own advocate sometimes and this is what I did by going to a GP to ask the comprehensive blood tests then going to get a 2nd opinion from a more experienced RE then going to an endocrinologist all on my own initiative.

[Wishingfortheday]

Hi Mini, I am so sorry to hear of all you have been through and are going through. I myself have also gone through recurrent miscarriage for the past 5 years, with 6 miscarriages, hysteroscopy, full testing, multiple failed rounds of IVF, PGS testing etc. (Btw, I dont know if you've tried PGS? It does work for many, but is quite costly). The only sort of answer we ever really reached was following the testing of some of the miscarried embryos and also the PGS tests, which showed they each had various chromosomal abnormalities. As my husband's sperm tested normally with even the most extensive tests, the specialists believed my eggs had unfortunately deteriorated in quality to the point a successful pregnancy was highly unlikely to be achieved. Of course I found this news heartbreaking, and took many months coming to terms with this. Eventually I felt ready to try with donor eggs, and on our first attempt (age 42) I became pregnant and am now 31 weeks pregnant with our baby girl, and looking forward very much to meeting her in a few more weeks' time. This isn't the solution for everyone of course, but there can be hope found, and loving families grown, in a variety of ways. I hope you find the way that works for you. Sending love and hugs your way xx

[Mini79 in reply to Wishingfortheday]

Hello

Thank for your post no I havent tried PGS . Do you know how much it costs ? How did you go through the process of getting an egg donor cause I think that is the route I'm going to have to take ?

So happy that things have worked out for you it must be an amazing feeling . So am I right in saying you used someone else's egg and put it in you along with the sperm. So you carry the baby . I think I would have to use a surrogate to carry my baby . Oh god all this is so confusing .

[Kiki0]

I’m so sorry to hear of your losses. I hope you find an answer xx

[Sjr1988]

I had a friend who had many miscarriages and she was referred to a specialist and it turned out that she had something that made it so the blood never flowed properly through the placenta.... she got put on aspirin every day of her pregnancy and now has 2 healthy boys.... has this be tried on you? Just a suggestion? Sorry for your loses I too had a stillborn and only one miscarriage but can sympathise.... I also now have a baby boy through medical intervention xx

[Mini79 in reply to Sjr1988]

Hi . Thanks for your post yes they checked my antipholipid and came back negative but still put me on aspirin 150mg and tinzaparin injections daily.

I think it might be my body rejecting the embryo developing. I dont know so many questions and very little answers .

Not giving up though I want my arms filled x

[Sjr1988 in reply to Mini79]

Yes don't give up xxx

[Nodds]

Sending you lots of love. I can’t imagine how you must be feeling right now, but wanted to say that I was thinking of you.

I’ve been doing research into blood type and whether it impacts on ivf success/ miscarriage as my mum is Rhesus Negative and can only carry RH Neg babies. It seems that I’m the same. Strangely, a lot of clinics don’t test for blood type? There is now treatment if you are RH Neg and found to be carrying w RH Positive baby. Just a thought...

Stay strong xx

[Mini79 in reply to Nodds]

Arhh thank you for that I will look into that and ask my consultant .

[JojoWash in reply to Nodds]

Your blood type should be on your notes, it’s something mw’s look for straight away as it’s commoni really hope that isn’t the problem

[JojoWash in reply to JojoWash]

Most people are ‘O’ type blood

[Nodds in reply to JojoWash]

Most are RH Positive. Only approx 20% are RH Negative

[JojoWash in reply to Nodds]

Ah I see, I know it’s something they check always when first pregnant. So hopefully that would not be a problem.

[Nodds in reply to JojoWash]

Sadly not.

I’ve been having IVF for the past 13yrs at multiple clinics (both NHS and privately) and NONE have tested my blood type. I’ve read through all the copies of my notes and it’s not mentioned anywhere.

These clinics include:

ARGC, London

Winterbourne, Dorchester

The Miscarriage Clinic, Epsom

NHS Salisbury

NHS Bournemouth

Either I’ve been very unlucky, or it’s not standard practice.

[zital]

Oh, your story is really heartbreaking. I can’t imagine how hard it is for you. You are a strong woman if you do not give up. But you are doing everything right, you must fight for your dream. Talk with your consultant about test options. Perhaps this problem can be solved. I wish you strength, patience and, of course, good luck in this difficult process.

[Elynn]

So sorry to hear of your heartbreaking journey.

[Mazzath1]

I'm so sorry to hear this. Absoutely heartbreaking. Can I ask what quality were the eggs? On your ivf. Xxxx

[Mini79 in reply to Mazzath1]

Hello .

I'm not sure all I know it reached 5 days blastocyst

[sadievalentie]

Hi there! How are you? I hope you are feeling better. 10 miscarriages, that is a huge number. I have tried for 10 years and it was so hard. And you coped with 10 miscarriages, I must say, I have never seen such a strong lady like you in my life. Maybe you are not able to give birth, this time I think you should go for Surrogacy. It can be the right treatment for you. It depends on you, but I also had my baby through Surrogacy. It's a wonderful treatment. I hope this helps you. Take care. Good luck. Stay blessed. Bye!

[Mini79 in reply to sadievalentie]

Hello . Thank you for your post .

It has been a very difficult journey with no real answers . I am waiting on results for my karyotype and tissue for genetic testing . If I find I cannot carry due to my body then surrogacy it will be . Can I ask where did you do your surrogacy?

[Mini79]

Hello

I need to find out from my results for my karyotype and tissue if it's my body then yes definitely will go for surrogacy.