Unexplained infertility

So I had my Hycosy today which shows my tubes are all okay and leaves us now with a diagnosis of unexplained infertility.

It's obviously great that nothing is wrong and I'm grateful to be in good health but it also doesn't give us an answer and I'm also in a position now where I really don't know when to start thinking about fertility treatments. Where I live there is no NHS funding so this makes the decision harder still. I have been looking at IUI as something to try first perhaps which is much less expensive that IVF but as there is not a known problem causing our infertility it's hard to judge when to make the decision to go for it.

Has anyone got any experiences of unexplained infertility and when you have decided t go for treatment and which treatments?

22 Replies

  • We were diagnosed as unexplained infertility after all the tests we were prescribed six months worth of clomid with no success, IVF was the next step for us. Fortunately we were entitled to one NHS funded round which we have just completed with a BFP I’m only 5 weeks and 5 days and know it’s still early days but it’s the closest we’ve ever been to being pregnant and just remaining hopeful that everything will work out. Good luck with whatever treatment plan you decide x

  • We get one funded cycle so it's good to see that it can work. Hope the rest of your pregancy progresses well x

  • Unfortunately they won't offer me clomid as I am ovulating regularly and they don't think it would be of any benefit. Thank you for sharing your experience. I feel that IVF is obviously the most direct way of going but with the expense just thinking another option may be worth a try.

    Congratulations and all the best to you!! Xx

  • Good luck with whatever you decide xxxx

  • We're also unexplained and were given 3 IUI cycles, which failed, and we have 1 IVF cycle which we'll start soon. IUI can work so it might be worth a shot as it is cheaper. I understand your frustrations with our 'diagnosis'. Whilst I'm thankful there appears to be nothing seriously wrong with either of us, at the same time it's like hitting your head against the brick wall because there's nothing to 'fix'. I find it more frustrating especially as friends of mine have fallen pregnant with endo and pcos. Good luck with whatever you decide.

  • Good luck with your IVF. yeah it just adds to the why me questions, really frustrating.

    Thanks for your reply. All the best to you too. Xx

  • Thank you xx

  • Hi ZigZag90

    My DH and I were diagnosed with unexplained infertility...mind you, it took a private IVF clinic 24 hours to figure it out after 5 years of being fobbed off by the NHS as we both in our late 30's at the time. VERY FRUSTRATING and emotionally exhausting. The private clinic told us that I have an intramural fibroid and my DH has low sperm motility hence why we were not conceiving naturally.....we were advised to start IVF straight away because we are now in our 40's. We were offered the 3 cycle package which we took. First EC gave us 7 eggs but only 2 made it to freezing stage due to maternal age resulting in poor egg quality. Once AF completed, we are looking at starting the 2nd EC stage. I have to have the fibroid removed to give us the best chance of carrying a foetus to term but with frozen embryos, there are now no time constraints. Hope that this has helped.

  • Sorry your journey has been so frustrating. Best of luck for the next stage, fingers crossed for you xx

  • Thanks

  • Hi zigzag90, I have been in the same position as you. Unexplained and will not prescribe clomid or offer any other help. NHS ivf has been reduced from 3 rounds to 1 where we live and we have to wait 3 yrs. I’m not sure it will still be available then so my DH and I have decided to go private. We’ve signed up for mild fertility which is due to start at the back end of this week. It’s much cheaper than normal IVF so we thought we’d give it a shot. Good luck with everything!

  • Sorry that should say mild ivf!

  • Thanks for your reply. It's useful to hear what different people have experienced.

    All the luck in the world with your IVF!!!

  • Thank you! 😊

  • hi zigzag, ttc 3 years & diagnosed with unexplained 2 years ago. i've had 2 failed rounds of funded IVF this year.

    for me, "unexplained" prompted more questions than answers. i still feel in total limbo & foolishly hope every month will be our month, even after all this time.

    clomid & IUI were never discussed, so i can't comment on them.

    i think everyone's journey is so personal, it's impossible to say what's best, but i wish all the best of luck on your journey ✨✨✨

  • I absolutely know what you mean about more questions than answers.

    Sorry to hear about your failed rounds. All the best for the rest of your journey.

  • There’s some research somewhere that basically says if you’re under 35 it’s worth trying iui but if you’re over 35 you have more chance of a live birth if you go straight to ivf. Can’t remember where I read this but it might have been the nhs or hfea websites x

  • Useful to know. Thank you :)

  • We also had the same diagnosis three years ago and it is very frustrating not having something quantifiable that can be "fixed". But then you feel guilty about being frustrated because you are grateful that there is nothing wrong. I guess your decision on whether to go for treatment depends on your own situation and age. We were just at the point of being referred for treatment when the NHS withdrew funding in our area. We've decided that we don't want to leave it to chance anymore because I'm forty in January and my husband is 49. We're exploring options abroad at the moment for IVF (unless a consultation suggests something else). I think the best thing to do is to talk it out and listen to your gut / heart. Whatever you decide, it has to be the best option for you and your life situation right now. Best of luck.

  • We had unexplained infertility and tried for 10 years. We had several rounds of iui, none worked. We finally decided to give ivf a go and it worked first time.

    There are some places where ivf is a lot cheaper than others so maybe that's worth considering even if it means travelling a bit further in this country or even going abroad.

    I wish it hadn't been unexplained really - it's so frustrating having doctors saying "you're young it'll happen, there's nothing wrong with either of you" when you know there must be cos that many years of not conceiving does not happen if everything is fine!

  • We had stimulated IUI which had a higher success rate than natural IUI. This meant I took injections and a trigger injection day before. It had a 15% chance of working and for us it did! I would recommend looking up clinics with the highest success rates of the procedure you want to try and have a consultation! Good luck! Xxx

  • Hello honey! You made the right thing you came here. Here I found information I needed. I was diagnosed with PCOS. Treatment didn't work for us. Now I'm thinking about IVF with using donor eggs. This opportunity just popped out in my life and I'm kind of lost and scared. I understand that this is my chance to have a baby. This is my chance to have everything I've been dreaming about. But everything I can think about is "what if it also doesn't work for us?" When I think about the whole process we will have to face... I don't know… I feel like I'm not ready maybe. I can't explain what is happening inside me. I have so many questions and not so many answers. Maybe if I know more about the procedure it will be easier for me to accept it. I want to stop being so negative and so depressed all the time. I was a completely different person 8 years ago. My long and exhausting ttc turned me into a person I don't want to be. I hope you’ll find option which will work for you! I wish you the best of luck!

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