Hi all, I have been stalking this sight for a while and don't really see much about OHSS so I wanted to get my story out there for anybody who has the symptoms of OHSS and is worried and to get other people's stories of how it has affected them after the stage I am at now.
I was told I was at risk of hyper stimulation during stims but I didn't know when it would kick in, I thought it might have been after egg collection or during the injections but I got through them very easily, it wasn't I started bloating after my egg transfer. 2 days after I started bloating, getting hot sweats/ hot flushes and really bad cramps, couldn't urinate without pain, couldn't do number 2 without screaming! After a week of suffering at home I then started being sick, getting dizzy and eventually I passed out so my other half had to call an ambulance.
When we got to the hospital they rushed me into resus and said my blood pressure was shockingly low and my heart rate was very high, they said they didn't know how I was still conscious! At the time I thought the symptoms were all pregnancy related so I just carried on, it was only when we went to the hospital we found out I was suffering from OHSS, they described it as critical and the worst my hospital had ever seen, the last time someone came in with it was 2 years ago and that was mild so I was the talk of the hospital/ gynae ward apparently. My belly swelled up so much that I looked 6 months pregnant! The fluid had leaked from my ovaries and pushed on my abdomen which in turn pushed on my diagphram and consequently stopped me getting a full lung of air. I couldn't use any of my belly muscles, had to be lifted up to move my pillows, move position, couldn't sit up by myself, couldn't eat much without getting full really quickly, was on a drip, had a kidney transfusion because I wasn't urinating enough and lots of pain killers. I was out of breath because the fluid had moved so high! It has been horrible! I had to have obs/ blood pressure checked every hour 24/7, bloods taken every 12 hours - my arms are now battered! I had a catheter and they made me drink at least 3 Ltrs of water a day and they were monitoring what I drank compared to what I peed.
I was admitted on 5th July and only released last night after begging them to let me home. Apparently still have moderate OHSS which normally women are admitted to hospital for but because I have been there so long and I can now move slowly they let me home and said I have to come in every two days. My ovaries are supposed to be the size of a couple of cherries but they are actually the size of 3 apples, on each side! I'm not allowed to lift anything, move tidy up or do any exercise or anything strenuous.
After all of this, the baby/ babies are healthy (they think it may be twins which is why the OHSS got so bad) I am 5 weeks 3 days pregnant 💪
I now really want to know if anyone else has been through this, especially critical OHSS and how you have been affected after leaving hospital.
Anybody who has this I wish you the best of luck, it does get easier but if anyone can tell me how they coped after 2/3 weeks of being diagnosed I would be very grateful, when did you go back to work, how were your symptoms, how did you cope? I want to know it all!!
Sorry for the long post but I think this is the shortened version for me!
Good luck to all ❤️