I am new...I would like to know the m... - Living with Fatty...

Living with Fatty Liver and NASH

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I am new...I would like to know the meaning of my results...

Purmaple11 profile image
7 Replies

September 25, 2018 I had my first fibro scan...these are my results from then...CAP: 305 db/M; fibroscan stiffness: 7.0 kPa; fibroscan F score: F2; fibroscan steatosis: S3.

April 22, 2019 I had another scan done to consider me for the NASH research study, these are my results...fibroscan CAP: 336 db/M; fibroscan stiffness: 12.8 kPa; fibroscan F score: F3 (Significant Fibrosis); fibroscan steatosis: S3. Can someone give me the straight-up version, please.

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Purmaple11 profile image
Purmaple11
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nash2 profile image
nash2Partner

Hi Pur

Well, on the face of it during that time your liver got fatter and the fibrosis progressed. However, you have to consider the possible confounders. There is an element of operator skill so if either of them was new or maybe had a bad day they could get a bad reading. Most operators are well trained but just food for thought. No tool is perfect and there is an error factor that always exists both with the machine and with your specific anatomy. Your hydration and how long it has been since you ate can both affect the readings. An infection can move the results also. These comments are just to make sure you are aware of the possible variation in reading. Beyond that, liver disease can progress that fast so the readings may truly indicate a rapidly increasing risk which needs to be evaluated. To do that your doctor needs to consider the whole of your medical condition and understand what has caused that change. Without more information no one can give you the straight answer. Hopefully you can be evaluated by a hepatologist.

Wayne

Addieann profile image
Addieann

Did you have a liver biopsy or just fibroscan? I don’t want to have biopsy and I wondered if I could be diagnosed without it??

Purmaple11 profile image
Purmaple11 in reply toAddieann

I had both. I haven't received my results yet from my biopsy. I'm still impatiently waiting. I feel like I'm in hell. I have pain all the time, I'm so tired I cant function. My feet swell so bad it hurts. I'm miserable. I have never been the person to complain about how I feel or hurt or even being tired. Now it's all I talk about. I hate it. I want to know exactly what I have so I can plan my life and live again.

Addieann profile image
Addieann in reply toPurmaple11

Thank you!! Was the liver biopsy terrible??? I hope you get good news soon!!

confused71 profile image
confused71 in reply toAddieann

My liver biopsy was a lot better than I expected ---apart from the result

Addieann profile image
Addieann in reply toPurmaple11

Bless your heart!! I’m worried too,although I feel fine. I am always afraid to hear news!!! Hope you get answers, eat healthy, and go on to have a great life!!! I think that’s what most of the people on this site do!! I think you and I will be fine!!! Best luck!!

Purmaple11 profile image
Purmaple11

The lab my dr sent my liver biopsy to told my dr that there wasnt enough of a specimen so they could get the results. My dr asked how my specimen wasnt enough when they took the standard amount. They had nothing to say. My dr thinks the messed it up or lost it, so I have to go in for another biopsy. More waiting...I just want to know what it is so I can plan the rest of my life. I've started to swell everywhere, its terrible, I hate it, I called my dr after the 4th day asking what's going on, she said she doesn't believe it has anything to do with my liver since theres no pain or my feet aren't like sweating, I was told to call my pcp. 2 days later my left foot started to hurt like I had hit it on to top part of my foot, now I'm nervous to call and tell them bc I dont want them to think I'm making things up for attention or something. I have never swelled before. Now my stomach legs feet and hands are like permanently sausages. So between the pain in my side that some days hurts so bad I cant sit, standing kills my back leaving me to laying, cant lay down at work. I'm so frustrated, so so frustrated! I just want to know what stage i have so i can get into a routine and figure out how to live with it. In my county, theres 1 nutritionist that's will see individuals. I have called about 5 times to request an appointment, nothing. No return call. So what do I do now? I cant make a change to my eating habits on my own. I've never been able to. I need someone to tell me this is what you can eat and this is how much and when. I cannot do this on my own. I've asked for help from others they just yell me to Google it. That dont work for me. I get an hour lunch so I spend it walking all over my job site. I'm trying but not getting the actual help I'm asking for. I dont know what to do. I'm angry as hell. I'm frustrated beyond words. I want to scream and yell. I want to blame someone, anyone. But I wont I'll compose myself, I'll smile like it doesn't hurt I'll laugh like I'm not so miserable I hate my life. Because this is who I am and how I handle things. People say all the time 'wow, your really handling this well. If it were me I'd be freaking out all the time.' I dont have anyone to freak out too or vent to so I wont. I just want to know what to do next. Sorry for venting but thanks for listening.

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