Maintenance query

[Scottishmumof2]

How long on maintenance dose have people expienced stools forming and not going so frequently? My 2 year old is still doing about 10 poos a day, like porridge. We are only on day 4 of maintenance on 4 laxido sachets. Is this normal quantities at this stage?

[Yaleamanda]

Have you disimpacted

[Scottishmumof2 in reply to Yaleamanda]

Yes last week, so completed disimpaction as per guidance up to 8 sachets. Was very watery for 2 days then went to highest maintenance dose of 4 sachets

[Yaleamanda in reply to Scottishmumof2]

Did you reach watery stools with no lumps consistently for a few days before you started reducing the doses down extremely slowly ie one dose every few days until you reached a suitable maintenance dose to remain on? If not it sounds like you did not disimpact fully.

[Scottishmumof2]

All the guidance i have read and spoke to ERIC helpline say once disimpact has reached for a few days, (which it was extremely waterery for at least 3 days) then go onto maximum maintenance dose and thats what i did. I find all the guidance is very contradicting as to what to do when disimpaction is reached.

[Yaleamanda in reply to Scottishmumof2]

Really it's best to go slowly especially when reducing the doses down. Watery stools with no lumps consistently for a few days is definitely going to help.

[Scottishmumof2]

Why is there no guidance from disimpaction dose to maintenance dose? Are you meant to reduce down until the maximum maintenance dose is achieved? Its so confusing

[Yaleamanda in reply to Scottishmumof2]

Ideally you stay at the maximum dose until you reach watery stools with no lumps consistently for a few days before you start reducing the doses down extremely. It's not something you can rush and it's likely you haven't fully disimpacted.

[Scottishmumof2]

I did stay on maximum dose hntil watery stools with no lumps for a few days before going to maximum maintenance dose

[Yaleamanda in reply to Scottishmumof2]

It sounds like you reduced down too quickly

[Yaleamanda]

Did you get this for a few days?

Watery stools

[Roastlover in reply to Yaleamanda]

Yaleamanda is this what it should look like when disimpaction has been reached?and do I keep my 4 year old on the 8 sashes unill she reaches it?

[Yaleamanda in reply to Roastlover]

Yes and then for a few days before you start reducing the doses down extremely slowly ie one dose every few days until you reach a suitable maintenance dose to remain on.

[Scottishmumof2]

Yeh i got that for at least 3 days

[Yaleamanda]

It sounds like you reduced too quickly then.

[Scottishmumof2]

I havent been told or read anywhere that from the very watery stools, did you have to reduce gradually until you react maximum maintenance dose.

Anyway, I'll just need to continue on the maximum maintenance dose and see how it goes. Stool has went from a 7 to a 6 in the last day so hopefully will keep forming.

[Yaleamanda in reply to Scottishmumof2]

Yes because the maintenance dose is unique to the individual, some need 4, some far less that's why it's important to do it slowly, also prevents the bowel going into shock. Join movicol mummies on Facebook you will get a wealth of information there on this.

[Scottishmumof2]

I will do thank you. I plan to stay on 4 for at least a week and see how the stool is. I do plan to do this reduction part very slowly to see the impact.

[Tulip18375]

hello,

I know this is quite an old thread but I just wondered how you got on with this as we’re having the same experience.

Stool is 5/6 and porridge like on a maintenance dose of 4 a week after disimpaction with no solid stools so far. Thankfully it’s just once or twice a day but still not ideal.

[Scottishmumof2]

Hi, I'm so sorry I can't actually remember what I did. I remember having to go thru the whole disimpaction twice, I think this episode must have been the first. My son is still on 1 sachet every other day, as when I try to get him fully off it he doesn't go for days and says it's sore. It's tough going but stick at it