My daughter is 4 she has been constipated for 3 years on movical she gets really sore bottom. Starting school. Does poop in her pullups

[Sunna]

She is constantly soiling and has the urge even when she falls asleep, she is starting school and I’m afraid what will happen she is fed up off constantly pooping it’s effecting her life really badly what can I do please help she is seen by PEADTRICIAN but I feel like they do t understand what she is going through.

[Yaleamanda]

Have you disimpacted her. Passing stools in her sleep is a sign of withholding.

[Sunna]

She had it done in hospital and was on 8 sachets movical a day but it made her poop 20-25 times a day but more like soiling and she was constantly sore .

[MrsKS30 in reply to Sunna]

Poor girl. Have you come across the ‘poo nurses’? Here’s a link incase not, I found them helpful

thepoonurses.uk/

What helped us was also using a stimulant with the movicol for about 2 months, not suitable long term. It helped her recognise feelings of when to go and helped clear her out. Best of luck.

[Sunna in reply to MrsKS30]

Thank you so much I will look into it as I feel like I’m not getting enough help from GP or the hospital feeling lost , overwhelmed and distressed.

[MrsKS30 in reply to Sunna]

I know how you feel, I was like that a year ago. It’s really tough when you are changing soiled pants all day. That stimulant definitely helped us and also I find if she rushes the toilet that causes trouble. She will sit with a book or toy just before bed for at least 10 mins and that brings results a lot. We’ve come a long way but she still soils sometimes, the GP says she will eventually grow out of it. I hope so. Hope things go in a more favourable way for you Both.

[Sunna in reply to MrsKS30]

I am also trying all sort of stuff to make it as comfortable as possible for her while she sits on the toilet but it’s still very challenging, I hope she grows out off it too, thank so much for your advise and support I wish you all the best to.

[MrsKS30 in reply to Sunna]

Yes it is challenging, they want to get back to playing, tv etc. I had to bring the potty back many months back and that helped also but she was still in Montessori so it was more appropriate. Just know you are not alone, my daughter started school too and it is a worry for me too. All we can do is keep trying to improve things As best we can - I give her weakened cordial/ squash too along with the movicol Too. Good luck.

[Sunna in reply to MrsKS30]

My daughter was really scared to sit on the toilet as she was scared off pooping but now she is sitting on the toilet but not pooping init I even sing songs to her to keep her distracted but hopefully she gets more confident to do a wee or even poop in it . Thank you for your support I feel like I’m not alone in this and I will try some off the things you are doing aswell.

[Myjakeys]

Hiya love , I’d ask to be referred to the continance team , they are experts and they will be able to advise you on maybe doing a disimpaction which is were you would give her so many movicol powders one day then gradually reduce it day by day , also they may prescribe her pico sulphate which is a laxative that would make her go. The movicol softens the poo whilst I; her bowel and then the pico sulphate makes her go. They ,ay suggest you do this over a weekend when she’s not in school . My son is 15 and he has been through all this and now has a ace fitted in his stomach ( I’m sure this won’t happen with your daughter ) but definitely try and get the ball rolling now xxx

[Sunna in reply to Myjakeys]

She was on 8 sachets at first and slowly tried to reduce it but she was constantly having the urge to poop like every 2 mins and because off this she used to be really sore on her bottom her skin use to bleed so I was told to reduce to 1 everyday for her to be able to do a good amount off poop but it’s not helping I feel as though I’m in a never ending cycle.I have asked for the hospital to refer me to someone regarding this but they say she don’t need to I will ask again as things have not improved as I feel really upset seeing my daughter go through this I feel so helpless thank you so much for your advise and support I will speak with the Pediatric doctor to refer my child thank you so much.

[Myjakeys in reply to Sunna]

You’re very welcome love . Also go onto this website bbuk.org.uk ( bladder and bowel uk it is ) there is a specialist nurse on there called June Rogers , you can get in touch with her she will advise on medication and she will liaise with your own doctor . Hope all this helps xxx

[Sunna in reply to Myjakeys]

Thank you so much I was going crazy looking for help and came across this foundation and to be able to speak with all the lovely parents giving me great advise and support, I will definitely contact her as soon as it’s morning and will update how it goes thank you

[Myjakeys in reply to Sunna]

You’re very welcome love xx

[Roxyrox]

You poor things...I know exactly what you're going through. My son is 7 and we’re only just starting to make some progress. He did all the same things as your daughter , I had so many trips to the GP seeing different doctors, one doctor even told me he was being misbehaved!! Good luck on your journey, you are doing all the right things for your daughter 😁

[Sunna in reply to Roxyrox]

Thank you so much for all the support as you have been through this you know exactly what we are going through I really hope we can overcome this.Thank you.

[Bambie83]

It could be that the disimpaction hasn’t quite cleared all the backed up poo in her bowel. I didn’t completely get my daughter clear until I did a 3rd disimpaction and this time I waited until she had three consecutive days of watery tea poos and then gradually reduced. She was probably at 8 sachets for nearly a week and then I reduced about a sachet every 3/4 days until I got to about 2 sachets.

I stayed at 2 as a maintenance dose until I really felt like she was starting to gain control again. We got a as really good toilet routine going (about 20 mins after each meal) and blow bubbles to get the muscles working.

She’s now on 1 sachet and fingers crossed has stopped soiling. Started school this week and so far so good. We’ve got into a good routine of trying for a poo before school each morning and a lot of the time she does one and then she’s pretty much set up for the day.

It may feel awful now and believe me I was in this same position at the beginning of this year - but it is possible you can get through this!

[Sunna]

I’m so happy that you have managed to get through this difficult time and now everything has fallen in place, my daughter is constantly soiling she ends up really sore on her bottom, Did you experience anything like that? Thanks

[Bambie83 in reply to Sunna]

No not really, as it’s getting on the toilet most of the time. Funnily enough my daughter found the really watery ones easier than the really hard ones to get on the toilet - I wondered if it was because the felt more like the urge to wee!

Is she getting nappy rash sore?

[Sunna in reply to Bambie83]

My daughter is scared to poop so every time she needs to go she automatically crosses her legs and that stops her from pooping, she has recently started to sit on the toilet but it still takes a lot of reassuring and comforting, I think because of the constant soiling and the constant wiping her bottom is getting sore .And yes probably as she tells me she has to wee every-time she in the toilet but nothing happens. I hope she breaks out off that cycle of fear.

[Bambie83 in reply to Sunna]

Oh yes I see that must be really upsetting... we do bubbles and blow up balloons - sing songs or watch little videos anything you take her mind off it. The balloons and bubbles also help with muscle control and is fun. Maybe that might break the ice...

[Sunna in reply to Bambie83]

I leave the tap water running slightly and sun her songs while she sit on the toilet she’s still afraid but she wants a lot of reassurance and holding hands, I will definitely try the blowing bubbles as she she likes bubbles, thank you so much wish you all the best.

[Bambie83 in reply to Sunna]

Good luck - keep going she’ll soon grown confident enough to not be so afraid anymore.

[Sunna in reply to Bambie83]

Thank you for your advise and support good luck to you aswell.