Hi, my son is 7 1/2 and had severe constipation and impaction as a baby and throughout his early years. We had little support from the doctors , other than to give him movicol, but we had no clue about the problems this would cause him later on, as he still leaks poo several times a day. It’s been a very frustrating time for us all , and I feel ashamed to say that over the years we have got very cross with him, as we had no idea that he didn’t have the normal sensation to poo due to his bowel being stretched. We’ve only recently been under the hospital and understand his problems a lot better now. A big thing for him is withholding , as a baby he had a massive fear of going, and this is just set in his brain and I know he still witholds and sometimes without even realising it!
Anyway , part of out consultants regime is that he cleans himself after he has a poo accident. This is to give him a bit of extra motivation to not withhold, as the usual consequence of this is a leak.
Anyway, this has been hard for me to let go of, as a mum, I hate the thought of him not being completely clean! Now he’s going back to school next week , I need to speak to his new teacher and put something in place for him so that he can go to the toilet whenever he needs to, without having to wait for teacher permission etc. Also , he needs to be able to clean himself up if the leak is bad, and I don’t want him having to do this in the boys toilets because he’s also very shy and hates anyone knowing about it.
It would be great to know any strategies that your children have in place at school, so I can make some suggestions to his teachers on how to handle things. I really am scared that we’re going to go backwards if the right measures are not in place for him at school, so he’ll go back to withholding and leaking.
Any advice would be great !
Thank you !