Thank you for sharing your stories, I’ve read some and although it makes me so sad to hear other people are going through the pain of this too I am grateful that You have shared them. My son is 8 and we have been trying to cope with this since he was 3yrs old. We’ve tried everything- seen GP and community continence specialist nurse and now Paediatrician- but no better. School are very supportive, separate toilet available, he’s allowed to go whenever he needs to, has a box in there with everything he needs to change. We’ve been doing regular toileting after meals at home for years. He’s back on movicol one sachet a day but it’s getting worse. He’s now soiling 3-4 times a day and regularly soiling at school (before it was usually only at home with weekends and holidays the worst). He says he knows when he needs to go but doesn’t want to stop what he is doing but I am not convinced. I think he has just learned to say this as perhaps he thinks we’ll stop asking him to go. This morning we have skipped the movicol as i am not convinced it’s helping. It’s impacting on what we do as a family, what he can take part in - despite our best efforts to make sure he doesn’t miss out. A friend wants to pick him up from school to take him to a birthday party for me which would be an enormous help but I can’t risk it in case he has an accident. I just don’t know what else to do.
Getting worse on Movicol, what are we doing wrong? - ERIC
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