My 9 year old daughter has never been dry since potty training and after what feels like a very long process we have a very good consultant at the Evelina at St Thomas hospital. With them we have tried medication, TENs, Biofeedback and last week she had video urodynamics. The results showed that her bladder was highly pressurized and when the bladder was trying to squeeze the urine out, the valve was quite tight shut. I don't know what the next steps are yet but my was traumatized by the procedure. She got very poorly after with a UTI (she has had so many of them but this one was by far the worst) and I am wondering where we will go next with it all.
She can never empty her bladder fully hence the recurrent UTIs.
Has anyone had a similar experience and if so what happens next?