Wondering if anyone has any experience that can help.
My daughter has been diagnosed with non-retentive soiling which basically means she does all her poos in her knickers, every day. She doesn't suffer from constipation. The trigger the first time was moving rooms at nursery (when she turned 3), then we solved it briefly for 6 weeks a few months later with the help of the health visitor & a couple of simple strategies (that incidentally have never worked again!).
As soon as she was told she was moving house (at 3.5) it started again and has never stopped (14 months later). We are under a paediatrician at the Evelina in London who has referred us to a child psychologist.
Our daughter is very open with the psychologist - no one can understand what is causing her to keep doing it. We have regular toileting routines and now with the psychologist's support we are starting to not only reward the right behaviour but introduce sanctions. As a family we are exhausted, sad and so frustrated by the issue. In all other ways her development seems entirely normal - she is sociable, friendly and happy in herself. The psychologist is baffled that there seems to be no underlying anxiety which could explain the soiling continuing. We can't currently leave her with other families, or clubs - we always have to be there so now we feel it is impacting her development.
School is a challenge as she often denies she has soiled but everyone can smell it. Briefly when things got really bad she started wetting herself as well but since we have started seeing the psychologist this thankfully has stopped. When we saw the two combined for the first time I realised that the experts must be correct and it had to be behavioural rather than medical. I guess I have always worried whether someone has missed something medically.
There seems to be loads of support for children with persistent constipation & retentive soiling - I just can't find the same with non retentive soiling. Really keen to hear from anyone who has lived through this nightmare and survived - and SOLVED the issue!
Thank you Steph