Hello everyone I'm new here and am grateful to find this online support community.
Since my radical prostatectomy in June 2014 I have had very challenging ED issues and would greatly appreciate any help or information to help ease the anxiety isolation and lack of confidence that I am experiencing. So far my surgeon and friends have said my only recourse is a penile implant. Thanks you all for reading this and your ideas and suggestions.
Tim, We really need more of your story to help you. Penile implants are typically the last choice. What else have you tried? There are vacuum pumps, viagra/cialis, muse, and injections which typically are tried first: what were your experiences with them? Also there are a few ED specialists who sometimes find treatable conditions that your average doc will miss. Have you seen one?
Note I'm not negative about implants, they work fine for several friends. It is just a rather expensive and permanent solution, so all other options should be explored first. Tell us your whole story.
Thanks BerkshireBear for your reply. Cialis/Viagara have not helped nor has a cock ring. I will try the vacuum pump thanks Injections work but only for up to 2 hrs and the anticipation of the needle puts me out of the mood but still it is an option that I often do not act on. What is muse? I will research an ED specialist yes for sure. Something needs to shift in favor for me with the ED and again thanks for your help.
Talk to your doc. about TRI MIX, it is a compounded injection, like Caverject, in fact Aprostadil is one of the three ingredients.
The cost is waaay less than Caverject. 5ml. costs me $85.00. I use a 20 unit injection, which comes out to 5 injections per ml. x 5 ml= 25 injections @$3.40 per injection.
Actually I recently found out that some docs start you on it early, after surgery.
I missed out on that, three and a half years ago.
This is an example goodrx.com/caverject.
Tri mix, peoplespharmacy.com/2015/05....
Do some research on it. You can even get an auto injector to put the syringe in, to not have to watch the needle go into prized possession.
If your doc. doesn't know about it, see someone else.
This is new to me also, but it is much better than everything else I have tried.
Good luck with your future recovery
Hi Tim, if you are uncomfortable with needles, you may want to try an autoinjector such as Inject-Ease. I just started using one with BiMix injections and it is very simple to use. They are OTC and you can google for prices.
Thank you Mr Prost for your fyi. I do appreciate it! Like very much your sugg of the autoinjector and will order one. How has BiMix served you better than the TriMix?
Again thanks so much,
I am really a newbie (1 week) on injections but just trying to put out my experiences.
I have only had TriMix once and that was a low test dose my urologist used in his office to see how injections would work. It gave me my first semi erection since prior to the surgery which was great. Unfortunately, it hurt like hell. So he prescribed the BiMix which has worked well so far, albeit have only used it twice but with absolutely no pain. I am updating my injection experiences in another post, "TriMix vs. BiMix" I think...
Thank you Prost and look forward to your next post re tri vs bimix.
Take good care
Update on BiMix experience:
1st time I used 10 units, partial erection w no pain.
2nd time, used 15 units, not quite as good result but possibly from bad aim with the injection.
3rd time (today), used 15 units again but was more careful w my aim, GREAT results,very close to a full erection, especially with the help of a cock ring. I was able to masturbate to a dry orgasm but boy did it feel great stroking with an erection! Yahoo! I have renewed vigor looking forward.
BTW, I read that MUSE is a "suppository" version of alprostadil, essentially a gel tab that you put down your urethta (the eye of the pocket snake) and it dissolves into the same membranes that the injection shots go to. Supposed to be for men who don't like injections. Sounds more painful to me, lol.
Good luck with whatever you try...
Mr. Prost (Dave)
Huge thanks there Dave.
Will try the cock ring to get better results.
Where do you reside?
I live in Southern NH. Married for 31 years with a lousy sexual partner so went the masturbation route for many years, got divorced and developed prostate cancer, probably deserved it, lol... Anyways, had the little bastard out and came out of that with some doubts but, as you can see, am trying very hard to enjoy my life with excellent results lately. If I can do it, anybody can...
Well Dave you are one (I mean Big little trooper.
Thanks for your fyi and inspiration.
Keep on truckin lol
I hope you didn't suffer too much since your surgery was in 2014 and that you find some relief from the ED. Luckily, and with the fine dedication of some individuals, there is plenty of support and information in forums like these. I was kinda worried when I couldn't even get a twitch from the little fella 8 months post-surgery, thought there would be something. I tried Viagra but it did abolutely nothing. Then I started doing more diligent research and injections sounded like the most promising avenue and so far it has worked very well. I hope the injections won't lose their effectiveness over time. I will also do more researech on the use of cock rings, they seem to help a lot as well.
I will probably try generic Viagra (Sildenafil) in conjunction with the injections. My insurance company has already denied the need for Sildenafil as it was prescribed for ED. In my opinion, it should be approved to help recover a bodily function post-surgery. My urologist prescribed it and I can get it from a reputable pharmacy but have to pay retail, still not too bad. It's to be used at 20mg three times a day to help expand the blood flow in the penis. It can also be used for intercourse with a higher dose. Still have research to do on this.
Most of these treatments are steps on the road to eventually getting back natural erections, at least on the physical side, by getting blood flow to increase in the artery running through the Corpora Cavernosa, essentially the pockets that fill with blood to cause an erection. This is the area the BiMix injections go into causing them to enlarge and allow blood to flow in. (I am not a docter but I play one on TV)
Although I'm extremely pleased to be cancer-free, I look at getting erections as a quality of life thing.
Sorry to ramble but just putting some of my experiences and what I've found on paper.
Update after BiMix 4th day experience:
Did the 4th dose (15 units) of BiMix today, did not work quite as well as the 3rd, but still pretty damn good. I'm beginning to think that the location of the injection is at issue. The first injection (10 units) was on the right side (decent erection), the 2nd (15 units) was on the left side (no improvement), the 3rd (15 units) was on the right side (great results), and the 4th was on the left side (not as good as the 3rd). The right side has had much better results. Not sure why...
UPDATE - 5th injection
I tried using 50mg of Viagra along with 15 units of BiMix, same result as before. I have tried Viagra alone with absolutely no stirring...
UPDATE - 6th injection
I upped the BiMix dose to 20 units and things continued to improve. I'd say I got about a 90% erection, eureka! Gotta talk to my ED Urologist to see how much more is safe...
UPDATE - 20 Units
Used 20 units on the right side, good results. Used 20 units on the left side, okay but nowhere as good as the right side results. Enough experimenting to think that the nerves on the left side were damaged more from the RP surgery than the nerves on the right side.
UPDATE - Knicked Urethra
I injected the right side and felt a little pain. Within a few minutes, there was a small amount of blood coming out of my urethra. Also, my erection was nowhere near what I managed before so I probably perforated my urethra and injected most of the BiMix into it. Masturbation was painful so stopped. I read somewhere where you shoud press the needle in until you "dimple" the skin. I probably used too much pressure with the auto-injector and it pushed in too deep. I'm going to back off the pressure and also look at shorter syringes (5/16" instead of 1/2").
Not expensive, its actually covered by medicare and many other insurance plans.