After a series of "episodes" such as, withdrawing from the room to lie down because things were too bright, loud - saying strange things, sleepwalking and having one event of "seeing things smaller than they should be" - my 9 year old son was diagnosed with "complex partial seizures." after a variety of tests.
Blood Test - normal
ECG - normal
MRI - normal
Assessment by one of Cape Town's finest neurologists.
Based on his experiences, he was diagnosed with the above and put onto Tegretol CR. This was all very hard for us to accept and digest - especially since there is no clear "evidence" of his condition, yet his behavior was very indicative of something not being quite right.
He does not have fits - and those episodes I mentioned above only happened three times over the course of 4 weeks.
For now, we were told to monitor him on the medication.
I feel utterly powerless in this situation and I don't like the medication side effects - mostly making him depressive, and a little bit lethargic. He is different. On the plus side, he does sleep better - we were told his "partial seizures" happen mostly at night.
I was thinking of getting a second opinion, but just to get to this point already cost us a fortune and our savings are depleted for the year.
Has anyone else ever been in this situation or perhaps can offer some insight or thoughts regarding our situation - it would be much appreciated.