Epilepsy and anxiety....mother and daughter

[elwiedhe]

My daughter , 34, has epillepsy since 2 years of age. It was very difficult to manage, and I developed a severe anxiety disorder in 2007 which caused me to not being in her company, with very bad consequences. I avoid all places and situations where she might get a fit. She is really very light sensitive and I wonder if there are glassess available to minimise this specific trigger. She gets grand mal fits. I have severe guilt feelings and other problems. My sister does support her very well but she now are very angry at me because she doesnt believe in anxiety disorders. She told me that I have rejected my epileptic daughter. All I want is to have a good relationship with her again. But I am extremely anxious that something could happen to her in my company and that she can die. Please are the other parents with the same problems? I stay in the Northern suburbs of Cape Town and would love to meet people I can talk to,

[EpilepsySA Partner]

Good morning, it would seem that you are in need of counselling with a professional. Our Western Cape Branch will be able to assist you (free of charge). You can contact them on [phone].

[elwiedhe in reply to EpilepsySA]

Hi Thank you very much. I will contact them. I am already seeing a psycholigist at a state clinic and nothing helps.

[elwiedhe in reply to EpilepsySA]

Hi. The contact number does not exist anymore. Is there another number?

[EpilepsySA Partner in reply to elwiedhe]

Work is underway replacing equipment which is why the number is temporarily unavailable. You can also email the Branch Director on [e-mail].

[Tlokweng]

Hi, you are not alone. My 24 year old daughter had her first seizure in 2013 and was later found to have a brain tumor. She was operated on in her final year of varsity and she actually graduated. Anyway to cut the long story short she gets seizure and in my race to protect her all the time i developed anxiety. I struggled a lot in the beginning. Mine is actually opposite to yours cause all i wanna do is be around her all the time. I dont sleep enough at night cause i wanna hear each and every sound in the house. i check on her 24/7 and i sometime struggle with giving her her freedom as she is an adult now.

when she is about to have a seizure she calls out for mommy. I am to tell the signs just before it triggers. I just wanna hug and tug her in and not let her go anywhere without me.

[elwiedhe in reply to Tlokweng]

Hi Tlokweng

Where do you stay? Im in Northern suburbes Cape Town

[Tlokweng in reply to elwiedhe]

Im in Boksburg in Gauteng