Frustration

[DebsStansfield]

It had been a good couple of months. I was on my way to a year seizure free when the accident happened. The same day as when I saw my neurologist another car drove into us and my shoulder was hurt. But it didn't matter as no attack happened. 2 weeks later my 7 month streak was broken. The stress was just too much. My doc had moved up my meds to 200mg, twice a day. But besides that episode, everything went well again. Until this past Tuesday when I had another attack. I am still in pain and want to scream and cry. I saw my doctor in passing and he told me that he will have his secretary contact me as he thinks my meds need to be upped again. I accept this as I know my levels aren't correct and the pills will help me not have another attack.

My mom doesn't really accept that I have epilepsy. She will feel sad when I have an attack and kind of not acknowledge it much the rest of the time. Whenever I tell my mom that doc wants to up my meds she can't understand why. And I don't know how to explain it in such a way that she would understand.

Any advice?

[LilysMom]

Hi Debs, I am so sorry to hear about your accident. I can only imagine how devastating it must be to be seizure-free for such a long time, only for it to be broken by an accident. 😔 I am the mom of a toddler with epilepsy, and can share that both her dad and I wonder if there is something we did wrong. Despite what the neurologist says, we still look for a “fault” within us. Perhaps start by telling her that? Also, that it often takes up to six adjustments to the meds until the right ‘cocktail’ is found. Good luck, and all the best 🤗

[DebsStansfield in reply to LilysMom]

Thank you. It really does mean a lot. 🤗

[Tonapo2018]

Sometimes Moms want to believe it will all disappear. But remember if this stresses you it won’t help you. Just try what is advised but do tell her when you have attacks.