Epilepsy South Africa
455 members149 posts

What to do

Hi all,

My cousin just moved in with me, he suffers from epilepsy (18 years old). Since he moved in with me, he had one seizure. What should I know? Any online resources that wont require a rocket science degree...Thanks

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Hi AlbertCPT,

I have had epilepsy for 42 years now. It appears you may be based in Cape Town from the CPT? If so, I am in Kwazulu Natal. I am also a member of Epilepsy South Africa.

You are welcome to contact me via email for more advice if based in South Africa.

My email address is: lesmal@mweb.co.za

Regards,

Les

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Hi - Aside from my career as a senior engineer, I am Vice National Chairperson for Epilepsy SA. I have had Epilepsy for 44 years and have gone through all of the issues as a teen and established and ran a Social Support Group for 26 years.

Advice to him: If not already, your cousin needs to have proper diagnosis by a Neurologist so that the medication used treats the type of epilepsy he has rather than just generalized meds. from say a clinic. There is a lot he can do to help himself in better managing the condition - in this I don't mean only taking medication i.e. identifying what triggers his seizures, so that he can alter his lifestyle to work with it. Stress & Subconscious Stress relief, etc.

Epilepsy South Africa have a lot of useful documentation on their web site - easy to read and diagrammatic. epilepsysa.co.za.

I have a lot of information too - medical, psychosocial, those affected, etc. but I would need to write a book, for which I do not have time. I and am open to you or your cousin phoning me for advice or I am also happy to meet if you are in the Cape Town area.

My phone number is 082 925 0404.

Regards

Tim de Villiers

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epilepsy.org.uk Also go on line and google Epilepsy SA. Surely you will have a basic understanding of this.

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