Posts - Epilepsy Research Institute | HealthUnlocked

Epilepsy Research Institute

2,336 members • 670 posts

All posts for May 2013

New member!

I've just found this online community - and I'm overwhelmed! Its reassuring to read that other people have had similar experiences to me, and who can relate to...

I've just found this online community - and I'm overwhelmed! Its reassuring to r...

nicolagreves

Volunteer•11 years ago

11 Replies

Weathering the storm

It's the simplest chill to take that little pill Slow it all to prevent the fall No sudden surprise, no flick of eyes All stop before I drop No...

It's the simplest chill to take that little pill Slow it all to prevent t...

Hidden

•11 years ago

7 Replies

i am tred all the time and i have headche

karen_1

•11 years ago

5 Replies

Want to take advantage of all our features? Just log in!

i was 10 years old when i docs said i have epilepsy and i am 53 years

karen_1

•11 years ago

3 Replies

Hello

My first post to this site. Don't know how many members there are? Look forward to 'chatting' with you. Jazzz

My first post to this site. Don't know how many members there are? Look forward...

Jazzz

•11 years ago

12 Replies

help on employment for epilepsy sufferers

What help do people with epilepsy get, when applying for a job, do employers shun away from people with this disorder. My son is desparate to work

What help do people with epilepsy get, when applying for a job, do employers sh...

bigc

•11 years ago

18 Replies

I am on phenytoin and keppra.since taking the keppra I have been very fed up.anyone had this feeling with this med?

Pb1958

•11 years ago

5 Replies

Has anyone found a weight increase when on Lamotrigine , I started about 4 months ago and just keep putting on weight

annaje

•11 years ago

2 Replies

I am on Phenytoin(Epanutin) and have been taking it for 30 years.

Although it controls my epilepsy, I have now painful feet and legs. Doctors have mentioned it could be neuropathy due to long term drug Phenytoin. anyone else...

Although it controls my epilepsy, I have now painful feet and legs. Doctors have...

Clarence11

•11 years ago

8 Replies

Has anyone tried anything to prevent seizures without drugs? Eg: ketogenic diet, etc. Information about your preventions etc would be great!

Rosalia

•11 years ago

10 Replies

Hi everyone, slightly concerned, I've seen a fair few reports online of extreme hairloss whilst taking topiramate/topamax, any info?? X

Rosalia

•11 years ago

5 Replies

Has anyone there experienced the effects of high and low atmospheric pressure on their epilepsy and the vulnerability in low pressure?

I seem to be more vulnerable to seizures and auras in low pressure - it is as if the protection around the brain is a lot thinner during bad weather and when...

I seem to be more vulnerable to seizures and auras in low pressure - it is as if...

monaco1

•11 years ago

8 Replies

Random thoughts for a random time

I remember I forget The memory isn't always set I forget that I forgot what I remember What I do not I remember a day which one i don't always know I...

I remember I forget The memory isn't always set I forget that I forgot what I ...

Hidden

•11 years ago

19 Replies

I've been having awful side effects with carbamazepine for about 4 months, my doctor said she may change my meds to topiramate?

Just wondering if anyone has been on topiramate and has any guidance or info? Thanks a lot x

Just wondering if anyone has been on topiramate and has any guidance or info? Th...

Rosalia

•11 years ago

17 Replies

My experience

Epilepsy has been in my family for many years.My father,myself, my son and niece. Mine are controlled by medication. My niece,age 43 still has them. Up to 2...

Epilepsy has been in my family for many years.My father,myself, my son and niece...

haydn74

•11 years ago

2 Replies

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Posts - Epilepsy Research Institute | HealthUnlocked

Epilepsy Research Institute

All posts for May 2013

New member!

Weathering the storm

i am tred all the time and i have headche

i was 10 years old when i docs said i have epilepsy and i am 53 years

Hello

help on employment for epilepsy sufferers

I am on phenytoin and keppra.since taking the keppra I have been very fed up.anyone had this feeling with this med?

Has anyone found a weight increase when on Lamotrigine , I started about 4 months ago and just keep putting on weight

I am on Phenytoin(Epanutin) and have been taking it for 30 years.

Has anyone tried anything to prevent seizures without drugs? Eg: ketogenic diet, etc. Information about your preventions etc would be great!

Hi everyone, slightly concerned, I've seen a fair few reports online of extreme hairloss whilst taking topiramate/topamax, any info?? X

Has anyone there experienced the effects of high and low atmospheric pressure on their epilepsy and the vulnerability in low pressure?

Random thoughts for a random time

I've been having awful side effects with carbamazepine for about 4 months, my doctor said she may change my meds to topiramate?

My experience

Search posts

Pinned Posts

Latest poll

What’s your number one trigger for your Epilepsy?

Topics

Archive