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Epilepsy Research Institute

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Moving and Caring

Life for me is very difficult at the moment and will be some time. My epilepsy is well controlled, but because of my age (83) the pills are overcoming me and...

Life for me is very difficult at the moment and will be some time. My epilepsy i...

rustypen31

•2 months ago

1 Reply

Have there been any new Meds discoveries?

Please can you tell me if there has been any new discoveries medication wise as my medication for my epilepsy does not help me?

Please can you tell me if there has been any new discoveries medication wise as ...

NicEllaDawn

•2 months ago

1 Reply

📢Introducing the #Onein100 campaign

To coincide with our first anniversary as the Epilepsy Research Institute, we are thrilled to launch our One in 100 campaign to raise awareness and secure...

To coincide with our first anniversary as the Epilepsy Research Institute, we ar...

EpilepsyInst

Partner•4 months ago

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Breakthrough Seizure After 10yrs - Shocked and Uncertain - What do I do?

Hey everyone. So I'll cut to the chase - I grew up with generalized epilepsy in my teens. Had a mix of focal and tonic clonics throughout the ages of 11-18....

Hey everyone. So I'll cut to the chase - I grew up with generalized epilepsy in ...

JayArch

•8 months ago

1 Reply

bio identical hormone replacement therapy in epileptic woman

Diagnosed in 1976 with tonic clinic epilepsy Treated with Phentoin Dilantin from age 16 years to 42 years. Have been on Levetriciam Keppra for 20 years...

Diagnosed in 1976 with tonic clinic epilepsy Treated with Phentoin Dilantin fr...

ChrisLyn

•9 months ago

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Diagnostics tests clear but still having seizures!

Hello everyone, I’ll try and keep it brief as possible but currently feeling at a loss and not sure how to continue. Had my first tonic clonic seizure in...

Hello everyone, I’ll try and keep it brief as possible but currently feeling at...

WillemRush

•2 years ago

2 Replies

Side effects of Lamotrigine - too high a dose?

I was seizure-free for 4.5 years until I got pregnant, and my medication was doubled as a result. I've now had my baby (almost 6 months ago) and am now...

I was seizure-free for 4.5 years until I got pregnant, and my medication was dou...

Jadorecats

•2 years ago

6 Replies

I am new

I was diagnosed with epilepsy at 12 and am now 59. I have two daughters with fetal valproate spectrum disorder. I have coped fine with epilepsy, I was young...

I was diagnosed with epilepsy at 12 and am now 59. I have two daughters with f...

Trelissa

•2 years ago

1 Reply

someone has to know!

my wife ( 69 yes old) is having episodes for four years, we have seen numerous neurologists including Mayo . Episodes include premonitions, increased heart...

my wife ( 69 yes old) is having episodes for four years, we have seen numerous ...

Needhell

•2 years ago

3 Replies

Epilepsy,Anxiousness and Fatigue

Hi all , I’m Antonio and I’ve never really chatted with other people who have Epilepsy but now I feel I should as I’ve had my fair share of experiences...

Hi all , I’m Antonio and I’ve never really chatted with other people who have E...

Alessigodfather

•2 years ago

1 Reply

burnt hand

hi Rachel, I was unfortunate enough to suffer third degree burns whilst having a seizure. I was aware of the seizure arriving and my departing thought was...

hi Rachel, I was unfortunate enough to suffer third degree burns whilst having...

6002athome

•2 years ago

2 Replies

Legal status of lamictal in uk

İ will be moving to uk soon and I am using lamictal for years. I do not know if I can buy lamictal there without prescription? Or what should I do to buy some...

İ will be moving to uk soon and I am using lamictal for years. I do not know if ...

Ozaydin

•2 years ago

6 Replies

Vagus Nerve Stimulation VNS

My partner (45yo) has epilepsy which is not well controlled with medication. He has been offered VNS by King’s College Hospital (London). We are looking for...

My partner (45yo) has epilepsy which is not well controlled with medication. He ...

Tuesando

•3 years ago

1 Reply

Tonic clonic seizure alarms (Good/Bad??)

Hi, hope everybody is keeping well. I have a young daughter who has epilepsy I was just wondering if anybody here uses a wrist alarm of some kind for tonic...

Hi, hope everybody is keeping well. I have a young daughter who has epilepsy I w...

Xandria11

•3 years ago

2 Replies

UK Epilepsy PSPS survey - NOW OPEN!

The UK Epilepsy Priority Setting Partnership is a landmark national survey gathering the views of the entire epilepsy community… and we need YOUR input! Find...

The UK Epilepsy Priority Setting Partnership is a landmark national survey gathe...

EpilepsyInst

Partner•3 years ago

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Epilepsy Dissertation Study

Not sure if this is allowed if not please delete. I am a university student studying my undergrad in psychology. Epilepsy plays a huge part in my family life...

Not sure if this is allowed if not please delete. I am a university student stud...

aspisepilepna

•3 years ago

4 Replies

Epilepsy Surgery Research Roundtable webinar

Join us at midday on Tuesday 31st August for a Research Roundtable webinar on epilepsy surgery. We’ll hear how Epilepsy Research UK-funded projects have helped...

Join us at midday on Tuesday 31st August for a Research Roundtable webinar on ep...

EpilepsyInst

Partner•3 years ago

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Padding for bed wetting

Someone please correct me if I’m wrong.... I’m sure that if you’re epileptic you’re entitled to bed padding via NHS??? I’m having trouble getting this on...

Someone please correct me if I’m wrong.... I’m sure that if you’re epileptic you...

Huggybear123

•4 years ago

1 Reply

#ALifeInterrupted

Join our #ALifeInterrupted campaign to: • Highlight the disruptive, interruptive impact of #epilepsy • Raise awareness of the inequalities in research...

Join our #ALifeInterrupted campaign to: • Highlight the disruptive, interruptiv...

EpilepsyInst

Partner•4 years ago

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Totally Cheesed Off

Once again my husband & I saw the Consultant in the Stroke Clinic & once more he denied that I suffered 2 strokes plus 2 more minor strokes & went on to deny...

Once again my husband & I saw the Consultant in the Stroke Clinic & once more he...

Hidden

•4 years ago

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Sodium valproate and sexuality

Does sodium valproate affect your sexual life. Does it stop you ejaculating?

Kofi1

•4 years ago

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Switching from sodium valproate to Lamotrigine

Is it a good idea to switch from sodium valproate to Lamotrigine?

Kofi1

•4 years ago

10 Replies

Found Out Something Interesting

Had a letter from the doctor regarding another health matter & originally he said that I didn't have Epilepsy, but in a letter that he sent me a few days...

Had a letter from the doctor regarding another health matter & originally he sai...

Hidden

•5 years ago

13 Replies

Zonisamide

Anyone taking Zonisamide experience bad reactions of weakness and shacking?

sloan44

•5 years ago

16 Replies

Temporal libe

Hi Has anyone had surgery for mesial sclerosis on the temporal lobe?

Tenerife1234

•5 years ago

5 Replies

Really Confused

Last Sat my speech went really slow & I couldn't swallow easily plus use my right arm that well. I was rushed upto our local hospital & admitted to the Stroke...

Last Sat my speech went really slow & I couldn't swallow easily plus use my righ...

Hidden

•5 years ago

11 Replies

National Epilepsy Week lineup

The ERUK National Epilepsy Week line-up is as follows… Grant Award profiles each day: https://bit.ly/2020-grant-awards Epilepsy Quiz: https://bit.ly/2T63cwi...

The ERUK National Epilepsy Week line-up is as follows… Grant Award profiles each...

EpilepsyInst

Partner•5 years ago

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Really Scary Time

On Tues I had a really bad seizure thanks to a virus I have round a friends which caused me to stop breathing & she had to do CPR, ended up in A&E with all the...

On Tues I had a really bad seizure thanks to a virus I have round a friends whic...

Hidden

•5 years ago

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Mood changed due to medication

Hello, A few years ago I had extremely severe depression. Then one day I had a tonic/clonic seizure. Ever since being on Lamotrigine, my mood has completely...

Hello, A few years ago I had extremely severe depression. Then one day I had a t...

Zazateki

•5 years ago

2 Replies

Slightly Confused

Had my phone appointment with the Neurology dept yesterday & the doctor said that he doesn't reckon that all my night seizures are seizures, that some might be...

Had my phone appointment with the Neurology dept yesterday & the doctor said tha...

Hidden

•5 years ago

2 Replies

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Posts - Epilepsy Research Institute | HealthUnlocked

Epilepsy Research Institute

Moving and Caring

Have there been any new Meds discoveries?

📢Introducing the #Onein100 campaign

Breakthrough Seizure After 10yrs - Shocked and Uncertain - What do I do?

bio identical hormone replacement therapy in epileptic woman

Diagnostics tests clear but still having seizures!

Side effects of Lamotrigine - too high a dose?

I am new

someone has to know!

Epilepsy,Anxiousness and Fatigue

burnt hand

Legal status of lamictal in uk

Vagus Nerve Stimulation VNS

Tonic clonic seizure alarms (Good/Bad??)

UK Epilepsy PSPS survey - NOW OPEN!

Epilepsy Dissertation Study

Epilepsy Surgery Research Roundtable webinar

Padding for bed wetting

#ALifeInterrupted

Totally Cheesed Off

Sodium valproate and sexuality

Switching from sodium valproate to Lamotrigine

Found Out Something Interesting

Zonisamide

Temporal libe

Really Confused

National Epilepsy Week lineup

Really Scary Time

Mood changed due to medication

Slightly Confused

Search posts

Pinned Posts

Latest poll

What’s your number one trigger for your Epilepsy?

Topics

Archive