My experience: Epilepsy has been in my... - Epilepsy Research...

Epilepsy Research Institute

2,350 members676 posts

My experience

haydn74 profile image
2 Replies

Epilepsy has been in my family for many years.My father,myself, my son and niece. Mine are controlled by medication. My niece,age 43 still has them. Up to 2 yrs ago my son, then 35,had them every day,some partial and some grand mal, which beganb when he was 18. Two years ago he wen to London Neurological Hospital for tests to see if he could be helped. After many visits and tests i different hospitals, he was referred for an operation toi take away the part of brain that was the cause. They cut the part of brain away, then a year later fitted him with a titanium plate. In the two years since the op he has been seizure free, so I say to you all, don't give up as you never know,the next one might be you. Good luck to all

Written by
haydn74 profile image
haydn74
To view profiles and participate in discussions please or .
Read more about...
2 Replies

This is great to hear and may he continue to be seizure free. I have had epilepsy for 39 years, which started at the age of 16. I managed to go 15 months seizure free just recently, but then all collapsed and the triggers and jerks have started again. I will never give up the fight and will continue day by day, which is the best way. Medication has certainly helped me during all these years, but I won't stop the fight! Love to you all, and congratulations to your son!

haydn74 profile image
haydn74 in reply to

Many thanks for your answer. I have had epilepsy since i was 11 and now am62. It was really bad for the first 10 yrs, then stopped for fifteen. Started again, an they got closer together. A lot of stress caused one about ten yrs ago, but lamotrogine was added to my normal ohenytoin, and I have been ok. So, as you say, day to day is the only way to look at it. Love and best wishes to you

Not what you're looking for?

You may also like...

How to get my parents to lossen up on me

Since I was 7 months old I had real bad seizures all my life I been on medications and had a lot of...
Michele1982 profile image

Hello, I'm new to this site...my son is now 36yrs and has had episodes of unconsciousness lasting up to 24hrs perhaps post seizure

my son has Epilepsy because of his Tuberous Sclerosis, he had seizures since 9months old. He has...
pip73 profile image

First experience

Hi My son had his first seizure on 1st Oct age 17, it was a complete shock. He had had jerks for...
Callummum profile image

Kepra and lamotrigine. Possible bleed on her brain, she is having a lumbar puncture today.

Hi my daughter takes max dose of Kepra and lamotrigine 400mg her Neuro has increased her dose again...
JanStott profile image

Hi all

Lately I`ve been feeling as though my epilepsy was going to come on but my body was fighting it. I...
trevor1954 profile image

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.