Has anyone there experienced the effe... - Epilepsy Research...

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Has anyone there experienced the effects of high and low atmospheric pressure on their epilepsy and the vulnerability in low pressure?

monaco1 profile image
8 Replies

I seem to be more vulnerable to seizures and auras in low pressure - it is as if the protection around the brain is a lot thinner during bad weather and when there are lots of clouds and rain around. Has anyone had this sort of problem?

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monaco1 profile image
monaco1
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8 Replies

No, seizures affect me in the hot weather, especially when it's very humid... Looking at the funny side of it, the heat pumps my brain cycle!

daisyd profile image
daisyd

Yes I think I do, flying on a long Haul flight. I am always worse. I am not sure about the weather, but do feel worse i think according to the time of the new moon, (just before ) gosh that sounds Bad doesn't it.

People say their pain is worse because of the weather, if they have arthritis

I have Hughes syndrome and at a forum on it, professor Hughes said that during a flight the pressure changes and people have noted a difference not just jet lag

Interesting I think I will now look at the weather.

I have epilepsy I think it was caused by the sticky blood. My epilepsy is controlled with Lamotrigine 300 mgs twice a day.

It's my memory that is affected.

It would be good if everyone made a note of how they are during the weather changes, then perhaps a poll on it

lucie01 profile image
lucie01

I find that the sunshine is rapidly becoming a major problem. When the sun's rays shines through trees, hedges, slatted fences and gaps it has the same effect on me as strobe lighting, and can trigger a seizure. I love the sunshine and being outside but my confidence

is beginning to wane as I am always worried that something may happen. Today I decided to try sunglasses in the hope that it solves the problem. Although it's early days I do think it helped.

annaje profile image
annaje in reply tolucie01

I also find the sun a problem and had my first seizure after travelling through trees with the sun shinning through trees. Now I wear polaroid sun classes all the time in sunshine , am having to avoid going to most shows because of the lighting. and some supermarkets where the lights have activated a seizure. I hope things get better for you.

lucie01 profile image
lucie01 in reply toannaje

I also have to avoid certain supermarkets because the minute i step into them my vision blurs, i feel as though i have been struck by lightening and my legs turn to jelly, i have to get out as quickly as i can before it brings on a seizure.

Christmas shopping was an absolute nightmare with all flashing and harsh lighting in stores. It's a relief to know that I am not the only one who suffers

in this way.

Were you advised to wear polaroid sunglasses or did you just decide to try it for yourself?

Faith99 profile image
Faith99 in reply tolucie01

I believe the fluorescent lights are one of my huge triggers. Overheating and then air conditioning seem to be a factor in certain stores...as I have experienced.

Gabe1031 profile image
Gabe1031

I've been wondering. My son has had seizures after each cold front has passed through for the passed two years

flcherrybomb73 profile image
flcherrybomb73

I do every time its cloudy or is going to rain feels like my head is going to blow up and i get really sleepy like i am now.

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