Possible nocturnal seizures?: Hi, I've... - Epilepsy Action

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Possible nocturnal seizures?

DaisyBelle85 profile image
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Hi, I've recently started experiencing what I can only describe as seizures in my sleep.

I'm a 33 year old mother of two, and It tends to happen not long after I've fallen asleep, I suddenly feel a tight pulling pain on the left side of my head, and with it comes a feeling of seizing up in my face and limbs. I get a sensation of numbness in my body- even my tongue feels like it flops to one side and my mouth feels lopsided- there have been times I'm biting my tongue.

This can last for a couple of long seconds until I'm able to snap out of it, leaving me in a very anxious and uncomfortable state. I always turn over to the other side in a bid to shake off whatever it is that's happening, and once I fall asleep- it's back to square one.

This can happen up to 4 times a night.

Another symptom I've noticed when I'm awake is a feeling of suddenly not being present. The only I can describe it is like someone switching a light switch on and off rapidly. In those brief moments where I'm "off" I feel like I'm not in my body almost as though I'm in a dream sequence with a feeling like my body is about to collapse.

Just to give you a bit of my medical history:

-I've had a brain and spinal MRI in December since suddenly developing Mononeuritis Multiplex in October.

-I've had extensive blood tests and scans, all of which have come back normal, aside from elevated Thyroid Antibodies.

-I have a goitre and Hashimoto's

-I take Iron supplements to help my low side of normal ferritin levels, and magnesium spray to help with the neuropathy in my right hand and left foot, as well 600mg of Alpha Lipoic Acid.

-I have TMJ

Any input from you guys would be most appreciated.

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EpilepsyAction1 profile image
EpilepsyAction1PartnerEpilepsy Action

Hi. Goodness that does sound like you’re dealing with a lot of different symptoms. Your description of what is happening for you at night does have some similarities to epileptic seizures. That’s certainly enough for it to be a good idea to mention to a neurologist if you’re currently seeing one. If not my suggestion is that you ask your GP to refer you to one. Whether it is related to epilepsy or not, I am guessing you could really do with having it under control.

I hope you get some answers soon.

Regards

Cherry

Epilepsy Action Helpline Team

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