Seizures without knowing it?: Heya, so I am... - Epilepsy Action

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Seizures without knowing it?



so I am completely new and I don't even know if this is the right place, but I can't think of a better place right now.

Anyways, I don't know much about epilepsy, apart from the fact that it causes seizures and that there are different types of seizures. Can you have a seizure and not realize it?

I am asking because sometimes, I have this strange feeling like I am "zoning out" and not realizing what is going on around me anymore, and usually I then lose my consciousness for like 1 second in regular intervals, but I wake up again each time, it's almost like when you fall asleep while doing something for a second but then shake it off, except for when it happens to me I can't just shake it off. Those episodes usually don't last long, up to 5 minutes maximum I would say, but afterwards I can't remember anything that happened in the moments before and I feel drowsy and weird.

Another thing that happens sometimes is that my shoulders seem to get more tense and I shake like there would be a cold shiver running down my spine (but there isn't, it's just my muscles moving without me controlling it) and then that happens up to 10 times in a row and I just feel drowsy afterwards, sometimes with a headache.

I have no clue what could be causing this, but maybe anyone here does? This has been going on for quite a long time, but it has been getting worse recently.

6 Replies

You do not state that you have been been diagnosed by a neurologist etc,

Ask your GP to get an appointment with a neurologist or even better an Epilepsy Specialist to explain your woes! Good Luck!

Cherry, I've had seizures all my life do to hydrocephalus that I was born with at birth. I can tell you that you can loose memory of a seizure if they're really bad. Those will leave you with bad headaches , drain all the energy you had before that bad seizure and you'll want to sleep afterwards. In my experience I get weird feeling where one is trying to start. Sometimes I can shake it off other times I can't. When I have bad seizures they have been known to last one to three minutes or more. When my allergies get bad it can set off a seizure . I'm on two different medications to control mine. You need to see a neurologist about this . They probably can figure out what is making you have these episodes. Please feel free to ask me questions you might have on this subject. I might can answer it for you. Take care. J. D. Quinn

in reply to JDQuinn75


Thanks to everyone who replied...I haven't been diagnosed with epilepsy or anything, but I was wondering whether what I was experiencing could have something to do with epilepsy because recently, I had one of those episodes and a stranger asked me if I was an epileptic and needed a doctor (at the time I said no but it left me wondering).

I had a pretty bad concussion in June, and I feel it's getting worse since that, however a CT scan I had came back normal. How complicated is it to detect epilepsy?

in reply to _cherry_

Ask for a referral to a neurologist. They can diagnose if you're epileptic and need to be put on medications to control them. They ask you what your symptoms are and may also order an eeg. That's a test that they glue wires to your head to check the activity in the brain. That test takes over an hour to do.

I have been fine for a few years but I used to get instances where I went blank mid conversation and I couldn't remember what I was talking about. It took a while to get back to where I was. This happened mostly when I was at work but I always managed to bluff my way through it. If anyone noticed, they didn't say, I must have been good at hiding it. Fortunately, my job was in an office so I was safe when it happened. I thought at the time it was part of my epilepsy but I didn't ever get it investigated, in case it had an effect on my driving licence. My epilepsy is nocturnal so I kept my licence after the usual 12 month wait after my first seizure

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