hot and cold sweats....when you think you... - Endometriosis UK

Endometriosis UK

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hot and cold sweats....when you think you have it sussed...

missee profile image
4 Replies

well i dont know whether to cry or cry.....these sweats are out of control im boiling to sweating to cold....i can honestly say i dont know how much more i can take off this god damn disease...i have as recently as wat 6months been having these...i have to get changed at least 4 times a day....it gets so much worse wen i stop taking naristerone im on 21 days then i have a 7 day break.....then let the games begin...and im so tired not slept properly in 3days...through pain and sweats and headaches.and my god did i have an emotional break down...i felt every emotion from sad..angry...self pitty...was my bday yesterday lol...i put a smile on...now i have a new thing very strange bowls....dont normally suffer with them...but wen i use the toilet it feels like its pulling something like its attached....and with urine i forever have to use the toilet...i know i have to go see my doc...suppose im scared that things have got worse and theres endo on my bowels...

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missee profile image
missee
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4 Replies
squidgy profile image
squidgy

oh hun bless you! So sorry to hear you are having such a bad time at the mo, both physically and emotionally. It is so frustrating esp when we think we can just about cope and know roughly what going on and then bam! Our body starts doing something else!

Unfortunately yes, endo can affect our bowel habits and cause pains. I am not a dr but sounds to me like perhaps the endo has grown more and could be affecting your bowels.

Do go see your dr. If a good dr, they may refer you back to a gyno for another lap if you have had one already. It may be they try u on a different pill to help with the sweats?

They may do what mine has done and refered me to a gastroenterologist re the bowel stuff to see if something else causing it..which the gastro has said is IBS! But i am not taking that answer laying down as he flatly refused that endo could cause bowel upset!

It is hard having to put a smile on and try cope with the pain, body changes, and emotional/psychological aspects of this horrible endo! Crying is a good way to release our frustration I find but it still not nice.

I hope you get to see the dr soon and things start to improve for you quickly. Sending you big hugs of support xx

p.s - belated birthday wishes to you too x

JulesUK profile image
JulesUK

Sorry that things are so bad for you at the moment. Just to say when I was on zoladex I started taking sage tablets and felt they helped with the sweating and temperature flux. May be worth just looking into it. Take care x

You poor thing. I used to get sweats just from the Endo but now I just get chills. Maybe we should all get together and do a charity single for endometriosis UK and sing 'sometimes its hard being a woman'. It bloody.well is! But ur not alone - I hav had pain for 7 weeks, constant and surgery on Endo hasn't changed it so waiting for bowel appt, dont feel well at all :-(. xxxxx

missee profile image
missee

thanxs for all your messages i do get comfort from them.....xxxx

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