Having a down day, fighting the system.

[sj_is_charmed]

I am tired, fed up and in pain. But aside from that, has anyone been successful in moving where you have your Endo treatment to outside your PCT?

I currently attend a gynae clinic with a urologist after I had a falling out with the gynae specialist, but now I feel she can't offer me the specialist care I need with the Endo.

Hope everyone is having a better day than I am xx

[Lillil]

Sorry I can't help you but having a horrible day fighting the system in another way, trying to get prescribed hrt - all we do is fight, it's so tiring!

Sending you hugs and trying to keep perspective this is making us stronger. try the search box at top of page or ask local support group by emailing themxxx

[endo_star]

Yep I'm being seen at a specialist endo centre outwith my local area, I saw them privately first and then my GP referred me.

[meme2]

Yes you can get seen outside your area, but you have to speak to your GP first. Find out where you want to go, speak to the endo consultant secretary and ask her if you can be seen. Then get the correct address of the hospital so you go to your GP ready to fight your corner if necessary to be referred.

So far I haven't had any trouble going to two different centres when the need arose.

Good luck. Hope it all turns out well for you.

[sj_is_charmed]

Hi Ladies,

I know it's my right to; ironically I am just coming to the end of a doctorate in healthcare services yet my GP insists I need to write a case providing evidence as to why this is better than the care I currently get. I could do this, but it's just something else I have to fight for and it frustrates me.

And to top it off, despite being on back to back contraceptive hormones, I have been bleeding for 5 weeks and last night, through the night I was glued to the loo either vomiting or the other. Symptoms I have on the first day of my period along with excruciating pain.

The more I read about it, the less confident I am in ever being relieved to an acceptable degree as my pain and symptoms increase despite treatment.

I searched for a group near me, there isn't one so I have applied to run it. Fingers crossed.

So today has been spent recovering from the nights antics rather than doing my PhD. I start a full time job in 2 weeks and I am very scared of the implications of my disease on my working life. How do you all manage?