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Endometriosis UK
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Down day

My period has started today, I feel so down and depressed today, I have really good days and some days I feel so down. Iv lost a lot of friends due to them not being understanding of my current situation, they didn’t seem to understand that I don’t actually want to stay in bed all day, I did want to go out with them all but my body had other ideas. All they saw was “bad period” I barely go out, I legit don’t have much of a life anymore as my endo is so painful. Iv been asking to be referred to a pain clinic for two year...it’s only just been done at the end of November but iv heard nothing as of yet. All I have to a hot water bottle and ibuprofen when my bloating flares up.

I only found out recently that my gynaecologist wasn’t a specialist...iv found and been referred to a endo unit for the 7th of February, so I’m hoping I get listened to and get help! I feel so alone and fed up, I’m 20years old spending my days in bed, breathing out the contracting feelings I get most the time, I try sleep and I get the most horrible anal pain either or my stomach cramps out. Yet no health professionals are helping me out.

Sorry for ranting! Think iv just hit rock bottom today and needed to get it all out

Emma xox

8 Replies
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I feel you, I'm also 20 but my friends call me a grandma they don't understand and put it down to me being boring! I used to be a dancer so I love going out but I physically can't, I say to them what's the point in me coming out if I have to come straight back home because of my pain I won't enjoy myself - ive lost quite a few friends from this but I'm glad we're they really my friends? Probably not.

I hope your appointment goes well and they actually do something about it, good luck x

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Yeah that’s true, they’re not friends in the first place. I hope you get the support you need soon! And thank you x

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I understand how you feel, I’m 18 and can rarely go out due to the pain and tiredness. My best friend think it’s an excuse I use to get out of it but I can’t even drink alcohol without the heartburn starting up which doesn’t make a night out enjoyable xx

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It’s horrible to go though and not be understood x

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Yeah, I’m always here if you need a rant or anything, just PM me as I’m younger and understand you completely xx

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Awh thank you! You aswell. Message me whenever! About anything xx

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Sending big hugs! Keep going to your GP or ringing 111 about pain. I've been given stronger pain killers and managing to work and socialize a lot more. Best of luck and hope you feel better soon xxx

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I'm really shocked your GP hasn't given you anything stronger. I would make an appointment asap and ask about Naproxen (it's like ibuprofen but stronger). Also, codeine or co-codamol could be taken when your pain becomes unbearable. Taking any pain killer takes time to provide consistent pain relief when taken everyday but it should make the pain more bearable day to day. If your not getting that level of relief you need something stronger. My gyne specialises in endo and he said atm Naproxen is the best option for me paired with co-codamol or codeine (codeine can cause gastro problems and didn't agree with me).

You shouldn't have to be referred to a pain clinic to get pain relief that your GP can easily prescribe. Can you take someone with you to an appointment for support? Or change your GP? Doesn't sound like your getting the support and understanding you need. I changed mine after she told me I was just "unlucky" to have painful heavy periods and wouldn't refer me. I now see a male doctor who is so much more sympathetic and because of him I'm having my first laparoscopy in less than 2 weeks.

Once your pains under control everything else will fall in to place. When times get tough your true friends will stand by you. I've said goodbye to many fake friends and I'm now much happier. Fake friends will bring you down whilst true friends lift you up.

Stay strong ❤️ and give your GP a kick up the arse!

Lou xxx

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