painful endometriosis.who has had a hyste... - Endometriosis UK

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painful endometriosis.who has had a hysterectomy and no kids.

6 Replies

i have had a hysterectomy because of this terrible disease i was wondering how many other women hasnt had the chance to start a family. i have been suffering from this scince i was 16 i have had the ilness in my bladder,bowel,womb,and a cyst on my left ovary aswell i was in hospital for a whole month when they done the op.it was terrible i hate living with this i do still have it in my bowel witch is quite frighting does any one else have this the same as me please write to me i need some support.xxxx

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6 Replies
Gillian19 profile image
Gillian19

Hi, I have one son who is 6 now. I had a hysterectomy after a couple of miscarrages after my son and was told they had to leave my cervix because the endo has attached to my bowel some way. I'm in no pain now since having the op in Feb this year 2011. But they say I need further surgery because of the bowel. I don't intend to have another op since I have 3 ops in the same scar already but if the pain did start again I think I might reconsider.

Sorry to hear you've not had any children. I am 41 and have had endo from the very first time I had a period the Drs say, that was 11. Take care. x

lisa-ann profile image
lisa-ann

How.can u have it on your bowl still if u have had a hystorectomy.

What age did.u.have hyto.

I am 24 and considering having one.

Iv had one lap in feb2011 having another early 2012

in reply tolisa-ann

lisa im not being funny but ive had it severe for 6-7 years now and i had it all on my womb wich is why they took my womb away ihad the main op done for this then when i came back round they told me that i had in my bowel and it was to severe to remove it at all the same time.im going back in next month.i was aged 21 when i had my hysterectomy.keep your chin up.i know its hard.xx

figgy profile image
figgy

Hi Kasy I had a hysterectomy last year after 28 years of pain and suffering in much the same way as you described plus other complications. I was never fortunate enough to have children and it is a mamouth thing to come to terms with, this aside the hysterectomy has changed my life although it did take a good year to settle down (and to control the sergically induced menopause). I have just come out of hospital after having more endo removed but in comparison to the life I had before it is a small price to pay. I am very fortunate to have a gynocologist who knows his endo and have been well looked after since being referred to him over 7 years ago. Please be assured that there are lots of us out here going through this so you are not alone. Take care x

Hayh81 profile image
Hayh81

Hiya, my tubes hav ben reconstructed as endo stuck my fallopian tubes to my bowel, they have been re-opened but for 6 months.

The 6 months are up in January time and no sign of pregnancy, my tubs could have reclosed already, I don't kno.

Anyway, after these 6 months, I hav no other option but to have a hysterectomy too.

I am 30 yrs old with no children. We are all here for each other, I'm so glad I found this site yesterday.

Take care and chin up, (yea I kno easy to say) !!! xx

in reply toHayh81

what sypmtoms did you get with that because i still cant have sexaul intercourse it hurts me to much.i cant orgasm or anything i used to get really dry but not so dry since i had my first operation.but still cant realease.but tell you what it gets weirder it trys to come out coulpe of days later.and also im in pain in my stomach afterwards aswell.did u suffer the same.xxx

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