You are by no means the only one being made so debilidated by this disease my friend, I cannot work because I have such an aggressive form of endometriosis that it is probably well past stage 4.
I had a TAH in 2008 and still it managed to return, with a vengeance may I add!
Since 2008 I have been signed off and I am now registered as disabled for an indefinate period because of my poor health. The endometriosis is so bad that I suffer with such severe back and leg pains, that it has also caused hyperesthesia, which means heightened sensitivity to pain.
I am on 3 types of opiaites and many other drugs to keep myself trying to get going every day.
Every day is a battle. Not just physically and mentally, but it challenges my son and my husband too.
My GPs have been fantastic with me in trying to do all that they can for me as I have exhausted everything they have tried for me to have some beneficial factor of pain relief to no avail! I have given them and my Gynae Cons such hard work!
Out of all the people I find totally ignorant and unsympathetic towards me about my disability and the cause of it are my two sisters and my brother.
I have tried to explain to them what it does, why I am the way I am etc etc etc etc but it's like talking to a brick wall. They get the total wrong end of the stick and think Im trying to get a sympathy vote, when in fact I am trying to get them to understand why they should make more of an effort in supporting me in other ways and sharing quality time with me whilst they can - it's quite difficult to exactly explain what I want them to do, but they are intelligent enough to see it for themselves, they just don't want to.
To answer your question - I have no idea how bad your endo is, how debilitated you are, or what you are going through with your life at the precise moment, but if you are anything like me, morphined up to the eyeballs every day to get some sense of relief , yet unable to function a normal day in your life for more than an hour, then the brutal honest answer is that the future is very likely to be very uncertain. TBH if you were exactly like me, the answer would be no, the prospect of going back to work is absolute minimal to the point of zero.
I kinow its not a good answer, but I dont see why I should lie - if someone was in the same place as me, going through what Im going through, then they deserve to know what I know from my experience.
This disease, endometriosis is just pure evil - there is no known cure for it and it ravages one's life so badly that it is almost like cancer, but without the death bit.
I dont know if that is a tad extreme for me to describe it like that, but I have seen people say the same thing elsewhere.
Its so shocking that endo is just as common as cancer and as common as diabetes, but it is not researched as much as either of those two diseases.
Like these two diseases they effect the body in such a way that there is no permenant cure, yet we are expected to live with it.
If you want to know more, or speak to someone with endo, visit the website called endometriosis in the uk.
its absolutely brilliant and its free to use. the women on there are so friendly and know exactly what you would be going through.
I hope that you will find some hope soon with a way to cope with living with this nightmare.