If only Dr House was real.....

[EndoEm]

Okay so he'd nearly kill me 3 times before getting the answer but at least I'd have an answer. I'm in a huge amount of pain today so I'm doing what I always do when things are bad- trawling the net for answers. It gives me something to focus on and I feel like I'm trying to do something about it. But all I find are similar (but not identical) stories of women who have been in pain for 3,4,5,20 years.

Every time I have a bad flare-up I am filled with dread. How long will this flare last? What if it doesn't end and I'm in this level of pain for the rest of my life? I'm starting to think that there must be a hormonal element to my pain. I seem to have a bad dose of depression the day before the flare-up and feel very down during the flare. Hopefully if I keep up this blog I can work out if this is the case or if it's my ongoing depression about being ill, hmmm.

I feel like I'm stuck until my Drs or me can work out the cause of the pain. The only thing I know for sure is that I had endo removed from my bladder but now there is no visable endo there. Just working out if the pain is nerve or inflammation or both would be a start!

In a huge amount of pain but I don't have periods! Gorram stupid useless body, why do you hate me so much? *bangs head against wall*

Meds:

2 lots of codeine so far -must remember to take dulcoease!

[ilovemykids]

Have you tried pregabaline it's brilliant for nerve pain, I use to be crippled over with pain but now I'm able to manage it. Side effects take s bit to get used to. Hope you feel better soon? Sending hugs x X also have you tried to increase your antidepressant I'm on 40 mg citlopram, it has take two weeks to get in my system but I dont cry every day now x x

[pinklotus]

Are you cutting out everything that increases pain? ie Wheat, dairy, soy, chickpeas, potatoes, aubergine, meat, alcohol, caffeine & most sugar?

[Duckybun]

Chickpeas, potato and aubergine!!! I've cut out so much can't believe these are bad for us endo ladies too!!!!! Pinklotus, please elaborate!

[pinklotus]

I know, unbelievable eh! Well, I have read that chickpeas contain a lot of oestrogen so best avoided. We are also suppose to avoid anything from the nightshade family which can make us feel very sick. These include peppers, aubergine, tomatoes and potatoes You have to see what works for you. I had gluten free pasta last night with tomato sauce and feel awful... But this diet has really helped me, I wake up feeling like a normal human being, with energy and pain free.

I also have concentrated aloe vera juice twice a day before main meals, this appears to help.

[givemeananswer in reply to pinklotus]

I just read on here somewhere yesterday that aloe juice is not recommended for us. Ironic.

[pinklotus]

p.s the diet is hard but the pain is worse so it's worthwhile.

[givemeananswer]

Hi EndoEm,

I enjoyed your post. I know exactly how you feel. And I do the same. I just met with a Gyno though who was just as pompous as House and he refuses to do surgery. Says it's not an effective way to treat endo they don't do it anymore and gave me the name of two alternatives which one of which is a drug still in trial phase not available yet to the UK the other from what I understand (thanks to Impatient) is only allowed to be used for 6 months in a lifetime and does a lot of robbing of the bones. I hate the idea of taking anything because it always comes at a price down the road, like how naproxen gave me IBS. You can't tell Dr. House what you want, he doesn't listen. I doubt he's ever read these forums or have the least bit of interest in how you feel. I wish I could have someone just as pompous to represent me and speak for me at these specialist appointments. Or better yet find a female specialist who also has endo.

It's frustrating as hell and yes of course we get down I've accepted that depression is just a natural state in my life and masking it will only do more harm in my opinion. I'm not dismissing anyone elses need for medication no two of us are alike but it doesn't agree with me. I'm 50 years old and refuse to be bullied in the playground anymore. I accept this is his opinion but he's not the one for me. So back to the GP for another referral and wait another 4-5 months for an appointment to see if the next one will be more compassionate. It's sometime hard to understand that they did get into this field to help people but I suspect some of them prefer delivering babies to helping the helpless. I just want to buy a few more years of pain free living before menopause. I don't want osteoporosis in exchange for that.