I've had endo at least 35yrs. I've had Zoladex for 6 mths. then hyst. plus ovaries removed, excision surgery of bladder, bowels, ureters, further surgery to revise and excise internal hyst scar at which point further endo was found and removed. I've been on Arimidex 6 years - this was great but recently seemed to stop working. Just recently I had about 8 hours of agonising contraction like pains that came and went and I could not move at all, could barely breathe. I am now back on Zoladex as no one knows what else to do. I had the first one 2 weeks ago. I've had 5 abdominal ops in all so any surgery would be fraught with complications and am not sure I ever want to go there again, hoping for a cure that never came! I also have really bad cyclical rib/chest pain which has never been resolved.
This illness is I feel unbeatable but the worst thing of all is the scepticism of others, most especially medical people who know nothing about it.