Has anyone tried Visanne: It is coming to... - Endometriosis UK

Endometriosis UK

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Has anyone tried Visanne

Efarms37 profile image
23 Replies

It is coming to South Africa in September so I will try it, apparently it is a real break through for endo pain.

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Efarms37 profile image
Efarms37
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23 Replies
tanya88 profile image
tanya88

Not sure what it is, if its a natural remedy it should work. Most natural remedies have proved to be very effective. Sorry haven't been much help

Martuszka profile image
Martuszka

Hey, I have been taking visanne for 6 months now. I had my lap December 2011. I'm feeling good, but the pain is still with me. I had a ultrascan and it shown no endo for now:) so that is good. But it the same time I haven't had my periods since last year, I guess due to the visanne. I have 5 more tablets to take and I'll see what will hapend next. I totatly recomend visanne:)

if you have more questions feel free to ask:) all best x

Efarms37 profile image
Efarms37 in reply to Martuszka

Thanks for your response I am having my lap next Tuesday then I will try the visanne.. Where do you get yours from?

Sheu9 profile image
Sheu9 in reply to Martuszka

You are recommending visanne but you say that you still have pain? I have taken visanne for 12 days now, on the first day, pain was gone but now it's come back, I thought at first that it was due to my having my periods, which was stopped with another progesterone preparation which I was getting 10mg daily and now I'm down to 2 mg of visanne which is the recommended dose for visanne. Please tell me clearly if visanne has helped you with the pain and if so then after how long?

Hope2heal profile image
Hope2heal in reply to Martuszka

Hi there

So far u seem to be the only person I can find online that has taken visanne for a substantial period of time-i have sever endo-and my doc has reccomended it.I'm hoping to fall pregnant and know my chances are better if I shrink my endo. Is it still working for you?and are there any terrible side effects I should be aware of?

Many thanks for your time.

aarr123 profile image
aarr123 in reply to Martuszka

Hi, i had lap last month n my doc prescribed me visanne to start from this november. I want to ask tht can i get pregnant with the treatment by visanne? Are there chances of infertility? Cuz ill be marrying soon. Thanku

Marian_C profile image
Marian_C in reply to aarr123

I have the same question...

Zanzoon profile image
Zanzoon in reply to Martuszka

Hi there. I just started taking Visanne. My doctor has me on it since I have endometrioisis on both my ovaries 😭. Could visanne help shrink them? You mentioned that your scan is not showing any endo.

Will Visanne stop my period? 

Thank you

msnyk09 profile image
msnyk09 in reply to Zanzoon

Hi there, I am interested to know what your experience was after visanne treatment. I just got off it last week and started to have white discharge but no period yet. I am not sure if it is good that im having a heavy discharge now. Also when did you do another scan after being on Visanne? Thanks.

msnyk09 profile image
msnyk09 in reply to Martuszka

Hi there. i know your post here has been a while but I am interested to know what your experience was after visanne treatment. I just got off it last week and started to have white discharge but no period yet. I am not sure if it is good that im having a heavy discharge now. Also when did you do another scan after being on Visanne? Thanks.

tinker241 profile image
tinker241

where can they get Visanne?? in UK or not??

Efarms37 profile image
Efarms37 in reply to tinker241

Hi there you can't get it in the UK yet but you can get it from a pharmacy in canada with a prescription. You need to ask your Doctor/gynae about it. Its available in South Africa in September so the UK might be the same. God I hope it really is the break through they say it is I can't wait to try it. Xxxxx

tinker241 profile image
tinker241 in reply to Efarms37

that a shame really as i am in the UK unfortunately... it is unfair that they sell them in the US or South Africa and what about the England that we all suffering it and i think in the US or South Africa not that suffering as they get the treatment... it is bloody nightmare sorry...

Efarms37 profile image
Efarms37 in reply to tinker241

I agree with you I am coming back to the UK at the end of the year and I do hope its available. One of my girlfriends has endo and her gynae said he knows about it and it is on the way to the UK. Might be worth asking your gynae when it will be available.

HeatherSwiegers profile image
HeatherSwiegers

Good morning

take a look at this link:

visanne.com/en/

Martuszka profile image
Martuszka

Hey, sorry for the late respond:( I had my lap in Poland so I got visanne over there. But I live and work in the uk so I have no insurance in Poland and I had to pay for it which was almost £40 for one box. Very expensive. I did ask my gp over here about it but they don't know much:( good luck on you lap:) take it easy after. Rest a lot:) you are gonna be fine for sure:) let me know how it went. Xx

canada1 profile image
canada1

I live in Canada and visanne just made it here in January. Prior to that i had the option of seasonique but did not want to take it as i heard terrible things about it. I knew visanne had been used in germany for more than 15 years so i contacted a doctor there and he suggested i try it as it will help a lot. I had my lap last august and did not want to take seasonique, i was okay for the first 2 months then the pain and bloating started again so in January i decided to take Visanne. I feel just fine, i dont have any pain, the bloating is gone away and i only feel very mild discomfort when i am supposed to get my period (which i dont anymore). You can find Visanne in Germany as well and its pretty expensive here as well.

nickym1d profile image
nickym1d

Interested to know if anyone is currently taking this, I know these posts are all old

This drug has just been licences in the Middle East I'm waiting to pick up my prescription...

Any advice ladies x

SharZ profile image
SharZ

I've taken Visanne for 9 months. It has completely stopped my periods (which has been nice), endo pain (except in the past week I've felt slight twinges), and it has had no side effects. I obtained it in Spain (52€/mo) but I'm now in the US. (I have a few months worth) Doctor (FP) here hasn't heard of it so I'm nervous how to obtain it and what it might cost? Also, does anyone know how long can we go without a period on Visanne? Thanks for all your help and testimonies!

mynydd profile image
mynydd

I took it while I was living in Austria (unfortunately it is not availble where I'm living now). For it to stop the pain, I had to take it all the time and not have a period, but I didn't have the side effects of weight gain and depression that some other treatments cause.

Ali95 profile image
Ali95

I have been on Visanne for 3 months. I suffered with cysts on my ovaries. My gynae advised me to stop the pill and wait for my normal menstrual cycle and begin the visanne. Since I have started visanne, my skin has broken out terribly, the cramps don't get much better and my period has stopped. I wouldn't recommend this to anyone

flute_player profile image
flute_player

I have stage 3/4 endometriosis in all sort of unmentionable places. We also have to monitor my left kidney, since the endo was found throttling my left ureter when I had a lap 10 years ago. It has returned after my two (miracle) kids were born. To treat my recurring endo and hopefully resolve the endo around my ureter, I started on Visanne in 2015.

The first 3 months were really rought! It thought that the Visanne could not possibly be the answer! Then it turned into a miracle drug, as soon as my body was used to it.

I started feeling better than I have ever felt for as long as I could remember. All sorts of symptoms that I never even mentioned disappeared, such as the extreme constant fatigue and muscle pain. I also was used to having pain in weird places (such as under my left breast) that completely disappeared! I once missed 2 doses and ended up with pain in those familiar places.

I can't imagine ever living without Visanne again. I've been on it for 4 years now. It has been amazing, absolutely amazing.

kopowicz profile image
kopowicz

In my 4th month in visanne/dianogest and got more of it now from my GP to take me up to a full year. I feel like yourself a new person and it really works for me. I had few months nearly pain free. Even less migrenes! Everyhing crossed it continues to work for me x

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