excision of endo

[Eggcustard]

Hi, was wondering if anyone has had excision of endo and whether it worked! I have been reading a lot on line about this treatment method being the best, sounds better than repeated laps.Does anyone know anything about this please? Thanks.

[Miwa]

I have recently had radical excision of endo, which involves removing the whole peritonal lining, including lining of bladder, bowel etc. As my consultant said although excision of endo specific deposits is more effective than cortirising/diathermy, the endo will grow back on areas that have not been excised. As when you excise an area the endo cannot grow back on that area, hence why he does a radical. He also said in laser/diathermy they cannot treat the bladder or the bowel, which is why this treatment does not work for many women. He also said laser/diathermy only treats the top 3mm, and yet endo can grow 3cm deep, which is another reason why excision is so much better as you can cut out all the depth.

I only had the op two weeks ago, so cant give my opinion on how it has helped, but I know two other women who had very extensive endo, and their symptoms were so much better if not completed resolved.

I hope this helps

x

[Eggcustard in reply to Miwa]

Thanks so much for the reply, good to know there may be an answer out there. Hope it all works out for you. Did you or your friends have a surgeon in the midlands? That's where I am. thanks.

[clarec]

I was warned against excision as I was told it was a much more agressive method and would have more chance of negatively impacting my fertilty. I have had 3 laparoscopies with laser though so that definitely didn't stop it coming back for me!

[Eggcustard in reply to clarec]

thanks for the reply. I am going to ask my specialist when I see him next, it's interesting that you were advised against it.I would like another child but can't see this happening now so excision may be possible.Keep well x

[stevieflp]

I can vouch for total radical excision. Had stage 4 endo - was told by gynae that hysterectomy and oophrectomy was my bet bet as I was 'such a mess', i researched and found this was not my only option - just the limit of their experience - it it therefore very important to make sure you see an endo specialist rather than a general gynae.

op 16 months ago - and now I do not consider myself to have endo as my life is totally mine again and not endo's. My period are normal with no pain whatsoever in between, back to the gym and no time needed off work. I won't replicate here what I have already posted on many occasions re this type of surgery versus everything else that gets offered as the posts will be on here still - but I can say it is the best thing I could have done for myself.

Feel free to PM me if you would like to discuss this or have any questions that I can help with.

All very best wishes

Fran

[bophead]

I had excision for what my specialist described as 'most definately severe' endo and adhesions 5 weeks ago, they also removed a chocolate cyst from each ovary .

I had pain in my left side still (which was where the majority of the pain was before op) on and off until about wk and a half ago. Had a few niggles here and there since then but no major pain. I am also trying the endo diet, but am struggling to keep up with it as I love good food to much, I am doing mostly wheat and dairy free and have cut down on meat and eating even more healthily than usual so it could also be this thats helping to keep the pain away. Anybolsy else here tried it?

I feel more like myself than I have in 2 years so Im keeping everything crossed that this has worked for me.

I am desperate to start getting fit again and doing some exercise but am worried about starting the pain up if I do too much to soon.

Stevieflip how long did you take to recover completely from the op? and how long before you could do any exercise again?

I am also on prostap which they said I will prob need for 6 months. Anyone else had this? I am just worried that when I stop it in 6 months then the endo will start again

[Eggcustard in reply to bophead]

Thanks for the reply.I also had 6 months of prostap and the pain that I had did stop, I found the side effects bad though. I haven't had my period yet since I stopped so,can't tell you if it's worked! I am expecting the pain to start up again as from what I have read it is only a temporary answer. good luck x

[stevieflp]

Bophead (that's made me laugh) . . . I can't recall too clearly now but it was about 6 to 8 weeks. It is one of those things that tends to happen by stealth. One minute you are still feeling the effects and then suddenly you realise that you have crossed a bridge and moved on from it. The post-op pain started to disappear around 2 - weeks. The hardest thing I found was getting my stamina back after such a long anaesthetic (7.5 hours). I remember going for my first walk out to the local shops probably about 3 weeks stage and I felt completely zonked. Stamina gradually built up and I was probably back to normal by 8 weeks. I did not get back to the gym though for some months but that was due to lack of motivation to do so o my part, and tiredness due to work stress, rather than as a result of the op. I could have started exercise much sooner had I been so inclined. My surgeon certainly said I could.