not sure what to do now

[lavendarcyclonequeen]

hi all! I began to suffer with my periods from being a teenager (fainting, migraines). The pain eased for a few years but I have had trouble emptying my bladder since I was about 17. Over the past 2 years I have developed symptoms such as stabbing pelvic pain, lower back and hip pain and pain with full bladder/bowels. I had a cystoscopy to check my bladder was okay, which it was. I was therefore referred to a gynaecologist who suggested I start Dienogest. This pill has vastly given me back all quality of life and basically stopped my pain! Although I do still feel like I have a bowling ball in my pelvis.

I had an MRI last month. This came back totally normal and the gynaecologist actually discharged me back to the care of my GP!! I‘m so angry about this as I had waiting so long to see this specialist. My GP basically told me she has no idea what the problem could be since no endo was found on the MRI.

So what do I do now? Do I push my GP to refer me for a lap? Is it even endo? I‘m feeling so defeated and really don‘t know what I should do. I‘d really appreciate any advice or experiences x

[CrochetDogMom]

Hi there, I'm sorry to hear the Gyno team discharged you before you could see a specialist. It sounds like it needed much more looking into as you cannot diagnose Endo via an MRI Scan.

If I was you, I would read through the NICE guidelines which states that the only way to diagnose Endo is via a lap, as some people have endo but their scans show clear. I would ask him to re-refer you and state these guidelines on the referral.

If the GP won't do this, you can always speak with PALS for your NHS trust re: your recent experience and mention the NICE guidelines to them. They are there to support patients who feel like they haven't been treated right, and it sounds like you haven't had all the investigations you needed.

I hope you get the answers you need and deserve!

[velowatching in reply to CrochetDogMom]

Secinding all of this! You can't diagnose via MRI.

I had some dealings with my local PALS and while it took a bit of pushing to get a proper outcome, they were very helpful, so I definitely would recommend getting in touch with them if you feel it would be helpful.