I've been suffering with recurrent UTIs and bladder issues for years. The urologists are at a loss but a recent scan showed signs of endometriosis and I'm wondering if this is the root cause.
Does anyone else have experience of this? If so, I'd love to know what, if any, endometriosis treatments helped with your bladder/ UTI symptoms.
Thank you!
I'm experiencing some bladder issues. Feels like UTI but always negative. Like sharp shock pain as I urinate and now experiencing the pain just in general. Been put on some tablets for overactive bladder by GP and refered to urologist. Endo nurse said not connected but I have a pelvic mri in 4 week for my endo so hoping this might indicate something with bladder
Thanks for sharing. Have the tablets helped? I've heard that bladder endo can mimic symptoms of UTIs but I nearly always get positive samples. I hope your MRI goes well and you get some answers!
Iv just had to change to a different type as the first ones caused chronic constipation. No difference in pain but iv noticed i can hold more urine and not going as frequently. Yes iv read that too, was just baffled endo nurse shut it down as a symptom, GP said it definitely sounds endo related. Thankyou hope you get somewhere soon too
Hi there, I've recently been diagnosed but also had lots of bladder issues over the years, including recurrent UTIs and more recently as my symptoms have worsened the feeling of UTIs when I am clear. I also have very intense pain when my bladder is full to the point when I am curled in a ball and staggering to get to the toilet.
From what I have read online, Endo is able to cause these symptoms, so it is worth pushing this to get it further looked into. I can't comment on medications as I am yet to see a specialist about this. But hope you both get answers and relief soon!
Yes i did read its an endo symptom. Thing is I have daily chronic severe pelvic pain sometimes it's hard to tel if my bladder also does contribute to this. Wen I saw endo nurse in December I did leave feeling like I'd got no where just got pop pill pushed on me to try (which I'm finding is making my cylical symptoms more worse) I got my endo diagnosis private and telling her all my symptoms and gave her the private paperwork she said it may not be endo... well what is it then, i know my body... iv a feeling when I do get to see the urologist there just going to say to go back to gynae - this happened when gynae first said it wasn't there department but bowels saw bowel department who said nope back to gynae. Its alot of back and forth and so draining. I'm glad you got some answers is it bladder endo? X
I always had bladder issues so dr would just send me antibiotics then send my wee off. Always negative.Ive been diagnosed with endo/adeo and now my nurse makes the dr dip test before antibiotics and touch wood ive been uti free for 9 months.
I have changed to decaf tea, take a cranberry tab every day and drink lemon barley.
The pains and feeling are much better and the weekly dip test keeps my mental health under control
I experience similar symptoms! Ive been diagnosed with endo and had a laparoscopy to remove some of the tissue. I was excited to finally be pain free and also rid of those horrible UTI feelings (which I get often and urine tests come back negative) but unfortunately the bladder pain hasn’t gone away. Mine isn’t constant but I say I get a “stingy bladder” at least once a week. I went back to the doctor but she said that it’s likely that they didn’t manage to remove the endo thats near my bladder as it might have caused further complications 🙄 So I got some dip tests from Amazon so I can test my urine myself just to double check it’s not an infection (which helps settle my brain) and then I just have to take paracetamol and drink lots of water. I also got a Floova tens machine which takes the edge off sometimes and when it’s really bad I was prescribed some paracetamol with codine in it. I don’t like taking that often as it’s causes constipation (which in turn aggravates my bladder symptoms) but it is a life saver when the pain is too intense. I hope you find some methods that help you x
Do I have IC? ( interstitial cystitis ) or Endo on my bladder.
Diaphragmatic endometriosis? Experiences/ symptoms/ treatments?
does anyone get weird bladder symptoms?
Other than the pain(!), what are your symptoms?
