Dienogest

[Poppy81]

Hello everyone,

Is anyone having trouble getting Dienogest from their local pharmacy? Mine can’t say when it will be available.

Thanks

[Jenna111]

Hi, I have to contact my gynae department to request dienogest for me and prescribe it to a pharmacy .

[Poppy81 in reply to Jenna111]

Hi, yes I have it on repeat prescription, the pharmacy just can’t get the stock in this time 😬

[Debs0810]

So do you stock up in advance? What are you going to do if they don’t get it in time? I thought you need to take the meds without a break?

[Poppy81 in reply to Debs0810]

Yes, you do need to take them without a break. I’ve got my GP surgery helping now so fingers crossed.

[GreenViolin]

Ask the pharmacy to give you the bar code number for your prescription so you can go to another pharmacy. Once you have the code, you can try anywhere else and if they don’t have stock move onto the next.

[Poppy81 in reply to GreenViolin]

Thank you, I didn’t know you could do that.

[Vet_nurse26]

you can get dienogest over the counter in Spain also. My parents live there, if you’re struggling pain wise waiting for the dienogest to come into stock

[Poppy81 in reply to Vet_nurse26]

Thank you, I’m hoping my GP surgery can help. I do have a few weeks spare.

[FerrariEnzo]

Oh goodness this is scary. Yes, I had trouble getting it this month, I was told there was an issue with the manufacturer (Zalkya), they substituted it with another brand, Dimetrum which I cannot take as it contains lactose - Zalkya is the only brand that doesn't. I had to have a friend take me to 4 pharmacies, thankfully the last one happened to have one box in stock but now I'm afraid for what happens next month. It sounds like there may be a problem

[Poppy81 in reply to FerrariEnzo]

Yes, it is scary. You were lucky getting the last box. Hopefully the issues get resolved soon. We don’t need the worry on top of everything else.

[FerrariEnzo in reply to Poppy81]

Yes it seems so! So scary. For me it's stopped my periods for about 10 months now and had such a big impact on quality of life (in that I actually have some now). I'm still in pain but I'm at least somewhat functional. Isn't it scary how dependant we are on it I really hope you can get yours soon xx

[BunnyMad in reply to Poppy81]

Hi there. Just a follow up on this, I've spent a couple of weeks trying to get my next box and cannot get it anywhere. I've asked 8 different pharmacies. I've been in touch with the company who make it now and they've confirmed a "temporary" manufacturing problem. They can't tell me when it will be back. I've got a few weeks left then I've had it :' (

Just thought you might want to know in case as I imagine you must still be having trouble. There are two other brands, Dimetrum and Sawis in case those are any good to you but would need to be prescribed by your provider if your prescription specifies Zalkya (if it's generic dienogest they might just give it to you). They're unfortunately no good to me as both contain lactose which I can't have but may be an option for you until Zalkya comes back (*if* it does - I don't know what to do if it doesn't!)

[Lily1986]

I’ve got 5-6 months worth here that isn’t going to be used. I will check it’s still in date and can post it to you if you like?

[Poppy81 in reply to Lily1986]

That would be amazing, thank you! Could you direct message me if they are date?

[Lily1986 in reply to Poppy81]

Oh yes of course. I will check now and message you asap.

[PBGV24]

I’ve just been to my pharmacy today and they’ve said there’s a huge stock issue I nearly cried it’s the only thing that’s helped my Endo pain.

[Daisy_call]

I’ve just been given my first prescription for this drug and after multiple asks to different pharmacies, turns out there is a manufacturer issue. I’ve had to go back to the consultant for a suggested alternative.

[User_2468]

I’ve had this problem, I’ve had to switch between 2 different brands (zalkya and Dimetrium) over the last 8 months but thankfully they are both helping me. Hopefully the shortage won’t be a longterm issue, I’ve had my period symptoms come on after missing the pill for just 1 day in the past