I’m really struggling at the moment with the mental health side of what I am being told is possibly early stage endometriosis. If this is early stages I dread to think what it’s like further down the line! I am bleeding randomly, sometimes light sometimes heavy, the pain in my lower stomach is getting on unbearable and the bloating is unreal! I feel so unsexy, like I’m always making an excuse to my husband not to be intimate (he knows the health side of things with me) it is really starting to affect our relationship! I feel I can’t do what I should as a mother to the fullest because of the pain I am in! I’m also tired all of the time!
I have a doctors appointment today to see what can be done to help me. I want nothing more than to have a hysterectomy and get this all out so I can move forward with my life! I am slowly getting to the point that there’s no point in being around the people I love because I am a burden!
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Painconstantly
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Hello no you are not a burden & please don’t think this way about yourself, illness can hit anyone at any time and unfortunately you are going through this at the moment. I have struggled mentally with having endo and adeno plus other health conditions. I have had to change my way of thinking, I have had CBT and counselling to help me to do this though as it’s not easy and trying to think more positively all the time doesn’t always work!
I hope you have a supportive GP and always put across what you want and expect when you have your gynaecology appointment with the consultant 💜
Hope you are feeling a bit better today. I’m not a mum or wife but I totally empathise. The Endo belly is one of the most annoying parts of this condition and I’m yet to find a solution for it because I have on average a week in the month where I don’t look 3-5 months pregnant.
Anyway here are some things which have helped reduce my pain days to (touch wood) 1.5 days (max) a month and I have adenomyosis and Endo.
1. Hormone balance tablets from MyVitamins
I think you have to take them religiously each day to start seeing results which I did see after a month.
2. Tranemaxic acid (prescription only) to reduce my blood flow. Again for the best results follow the prescription
3. Naproxen (prescription only). I think this is the biggest game changer plus the hormone tablets for me. I’d take this with 2 paracetamols because you unfortunately can’t take ibruprofen with this one
4. Codeine (prescription only) I’d take this at night with a side of paracetamol which helps me sleep through the pain. The GP might be reluctant to prescribe this for addiction reasons
Hopefully your gp is helpful and willing to prescribe you pain management
Other remedies:
The hot water bottle on day 1/2 of my period is my best friend
Raspberry leaf tea was recommended but honestly I’ve not seen any benefits of this yet
That’s all I’ve got. Also whilst I’m not married despite how you may be feeling I’m sure your husband & kids love and appreciate you very much .
Also if you aren’t taking any prescription tablets I find one of the best pain reliefs to be the liquid capsule ibuprofen tablets. You just can’t take them alongside some other meds so just double check.
Hi im going threw the same. I got my diagnodid in jan due to laposcopy. Had a mri and ive got endo, adeo, cysts, fibroids.Im now on the waiting list 12-18 months for hysterectomy. My mental health since jan is awful and ive felt the same. The pain is awful. Im now 7 months into zoledex and the pains are better and ive no periods but i still feel unsexy, scared of sex coz it hurts and bleeds and causes a flare up. Moods are low.
Since the zoledex i feel bit better and have struggle days, im focusing more on myself, self care and my kids. Your partner will either support you or wont as they dont understand. Ur not alone and this condition is not our fault xx
I was put on a 12-18 month waiting list for a hysterectomy in Feb. I got a call yesterday saying they have cleared a huge backlog of cases and my surgery is booked for 3 weeks time 😱
Hopefully you won’t be eating for the full 18 months x
That's amazing! Good luck with your hysterectomy. Mine was the best thing I ever did for my health and wellbeing 😀 My endo is gone !! You will be fine. Lots of hugs xx
Thank you. I can’t wait for it to all be over. I had years of being told I was too young then a new consultant said that was rubbish and put me on the list. Having to take morphine now just to deal with the pain x
I can feel your pain. I understand. But you will get better and you will be healthy again. Get yourself a good women's health physio after your surgery when you'll be ready. They understand how chronic pain affects your brain and your body and will help you to get back to your self ( which will be a new you because I am sure you are not rememebring being without pain anymore ) . Your body will heal and so will you. Excited for you starting soon on your healing journey. Xxx
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