New endo diagnosis

[Pugparent]

It’s a bit of a long story… I guess my question is can you have endo without the chronic pain?

A month ago I had laparoscopic surgery to remove an ovarian cyst. During the laparoscopy, they unexpectedly found that I have a hemi-uterus (she’s since had a gynae radiologist have a look at my MRI and it was on there just not reported) and also one small patch of endometriosis. She didn’t remove it as the tissue was close to the tube for the kidney and didn’t want to risk it. I have to have another ultrasound on my kidneys and bladder to check how these are. I’m waiting for a prescription of Dienogest as treatment for the endometriosis.

I’ve come on here to ask if anyone has endometriosis but doesn’t have the chronic pain described on most symptom lists? In my appointment yesterday I forgot to ask this.

I could attribute some other symptoms to endo but I’ve never seen anyone about them -painful periods - nothing stops the pain, heavy periods with big clots, spotting, pain during sex, fatigue. I’ve always just carried on as thought this was “normal”.

It’s all been a bit of a shock and upsetting. I’ve been off work now since 03/06 and getting anxious about going back ☹️

[ClaudiaGrace]

Hi, I generally don’t have the chronic pain people describe and have had endometriosis cobfirmed and removed by laparoscopy once and since scans that indicate my ovary is fused to my uterus thus indicating endometriosis again. I have pain during sex, frequent need to pass urine/this sometimes causes me pain and occasional random pain but nothing like what people describe. I havent even ever had heavy periods! So yes, people have stage 4 and no pain.

[Pugparent in reply to ClaudiaGrace]

Thank you for sharing😊 my GP initially thought I had endometriosis but when the scans showed the cyst, they didn’t look into that any further