It’s a bit of a long story… I guess my question is can you have endo without the chronic pain?
A month ago I had laparoscopic surgery to remove an ovarian cyst. During the laparoscopy, they unexpectedly found that I have a hemi-uterus (she’s since had a gynae radiologist have a look at my MRI and it was on there just not reported) and also one small patch of endometriosis. She didn’t remove it as the tissue was close to the tube for the kidney and didn’t want to risk it. I have to have another ultrasound on my kidneys and bladder to check how these are. I’m waiting for a prescription of Dienogest as treatment for the endometriosis.
I’ve come on here to ask if anyone has endometriosis but doesn’t have the chronic pain described on most symptom lists? In my appointment yesterday I forgot to ask this.
I could attribute some other symptoms to endo but I’ve never seen anyone about them -painful periods - nothing stops the pain, heavy periods with big clots, spotting, pain during sex, fatigue. I’ve always just carried on as thought this was “normal”.
It’s all been a bit of a shock and upsetting. I’ve been off work now since 03/06 and getting anxious about going back ☹️
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Hi, I generally don’t have the chronic pain people describe and have had endometriosis cobfirmed and removed by laparoscopy once and since scans that indicate my ovary is fused to my uterus thus indicating endometriosis again. I have pain during sex, frequent need to pass urine/this sometimes causes me pain and occasional random pain but nothing like what people describe. I havent even ever had heavy periods! So yes, people have stage 4 and no pain.
Yes absolutely you can have stage one and be in agony or stage 4 and not experience chronic pain it’s a weird condition. In my case I had stage 4 complex endo and never had pain during sex everyone experiences the pain differently
I had quite big cysts on my ovaries which caused chronic pain (though not horrible one). When I had surgery to remove those, they found it was endometriomas and I also had a LOT more endo but had to leave that as they weren‘t qualified or prepared for that. Scans since show smaller endometriomas and lots of adhesions, stage 4 endo, fused bowel etc… BUT I feel completely fine. I‘ve had painful cramps on my period all my life but nothing else.
I started diegonest yesterday, I’m hoping I don’t get too many side effects. I’ve had the implant, 2 mirena coils and tried various mini pills (I can’t take the combined pill due to migraines) and I’ve always had lots of side effects with these so I always ended up stopping them. I’m a bit nervous with how I’ll get on!
I had a an appointment with gynaecologist on Saturday, had a biopsy which has made me swell up like a beach ball, that’s fun. Anyway whilst I was there I mentioned I had no chronic pain with endo ( diagnosed last year), not like excruciating pain that i have read about so clearly in my mind I didn’t have a lot of it, apparently as the stages go on you don’t get so much pain. As the endo is now all over the place I shouldn’t have pain, I mean obviously it’s uncomfortable but not excruciating so that can only be a positive.
It was a bit of a shock to find out I had endo tbh. My GP thought I had it when I first went to her but as my ultrasounds showed a dermoid ovarian cyst they put my symptoms down to that.
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