Plz help: I have adenmyosis and endo which... - Endometriosis UK

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Plz help

Loopylou198538 profile image
4 Replies

I have adenmyosis and endo which is now on my bowel got diagnosed seeing a lricate endo specialist. I've been on nhs waiting lists as emergency for God knows how long. The pain is unbelievable. I have tried everything to help carry on with life and nothing is working. My local hospital has an endo specialist unit with ling waiting lists. If I go to a and e will they hurry things along.

I am sat here in so much pain right now. I just can't cope anymore!

Xxx

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Loopylou198538 profile image
Loopylou198538
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4 Replies
K2023 profile image
K2023

Hi, sorry your in so much pain, it is awful and a tough situation to be in.It is hard to say wether A@E will hurry things along.A@E will put it on your notes but wether anyone bothers to see is a different matter.Personally I would contact the consultants secretary who you are under and explain how much pain your in,this will then have to be passed to him .If you have been waiting months and months you can go through Pals ,this was the only way I got my surgery date and I was classed as urgent waited 10months .I completely sympathise with your situation and hope your finding some relief today . take care .x

Sara0102 profile image
Sara0102

hi hun I feel ur pain I am in exactly the same position .. it’s come to a point where I’m thinking to go private and finance it

I have a endo ultrasound this month I don’t even know if I have endo atm but my consultant is 90 percent sure I do have it

A&e can speed things along if u go in and jus say I’m not going but these days it’s hard to even get an admission I mean they won’t do it lap surgery but they can do further testing..

Which scan was u diagnosed by ?

I-dunno profile image
I-dunno

hi

I’m really sorry your struggling right now

I know that pain it’s just too much.

I take my meds you can take para ibuprofen or like any other pain killer they have prescribed you

And I have a bath with Epsom salts and lavender and clary sage

So I kind of give it a big hit

I don’t like coedine but may take a 30mg tablet with the para and ibru

Then rest with a heat pad.

In terms of surgery when u can make a call and say it’s too much unbearable pain

Can they fund your surgery from NHS to private care as they have no availability.

I read a woman got that done here and they do that sometimes.

So hope the best for you.

Char30 profile image
Char30

hi I’m sorry your in so much pain. I sympathise completely. If you don’t mind me asking what are your symptoms? I’m just in a lot of pain too. Been waiting for a laparoscopy for months and months and just keep being told it’s a long wait time and that’s only to diagnose endometriosis. End up feeling so helpless. Exhausted all the time.

Sorry I’m no help for your post.

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