mixed feelings after diagnostic lap - Endometriosis UK

Endometriosis UK

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mixed feelings after diagnostic lap

PBGV24 profile image
4 Replies

On my operations notes said mild and superficial endometriosis found and looks very clear to me on my pics where it is.

Then when the consultant came to see me said none was found? So very confused? 🤷🏼‍♀️

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PBGV24 profile image
PBGV24
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4 Replies
Tiff22 profile image
Tiff22

Hi, I posted on here after having my lap in December. Adhesions were found that had stuck some of my organs together but was told that it isn’t endo. Everyone that replied to me recommended to get a second opinion with a bsge specialist because regular gayneas don’t always know what they’re looking at.

I’m sorry that you’re going through this and I can understand how confusing and frustrating this is. Definitely get a second opinion. I hope you get some answers soon 🤞🏻

Lofty1589 profile image
Lofty1589

Get a second opinion and request your surgery notes - you can do this by Googling your hospital name and Subject Access Request. They have 28 days to give you the information you request. That should give you a definite answer as they’ll have to list anything they find on those notes.

PBGV24 profile image
PBGV24 in reply to Lofty1589

Yep on my actual operation notes it’s says superficial endometriosis to anterior wall! That’s why I was getting confused. Everything else normal.

Lofty1589 profile image
Lofty1589 in reply to PBGV24

I would take that as you having Endo confirmed then. If they say to you again nothing was found, you can refer them to your notes.

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