UTI caused flare up

[NatAlex29]

Hello,

I’ve always suffered with recurring UTIs, and UTI symptoms. On diagnosis endo was left around bladder due to concerns in removal.

I’m feeling a little fed up, started with UTI symptoms early hours last Monday - confirmed UTI by dip test which was sent to lab (strain identified). During this time I was either not going to the toilet (bad I know but tried to work through it until the weds) and spending the nights in the bath I’m agony, loosing small clots and feeling the urge to push (only way I can describe it).

Normally when I am prescribed antibiotics the symptoms, painful urination ease quite quickly but this time I didn’t feel right. Felt nauseous, pain lower pelvis and lower back so headed to out of hours on Monday who repeated dip test which was clearer however prescribed another course of antibiotics due to symptoms and recent lab result. They mentioned during the visit that the pain could be due to my endometriosis potentially flaring up due to UTI.

I’ve put through for a sick note as I’m still experiencing pain - lower pelvis, urethra (when going to toilet often) and lower back and feeling quite run down. Sick note has come back as ‘suspected UTI’, out of hours didn’t document around endo link at all and GP has gone off this visit only not all history.

Having one of those times when you just feel like your loosing the plot with it and it doesn’t help when lack of knowledge around what you’re going through.

Guess I just needed to say in a safe space and also if anyone else has noticed UTI causing flare ups (feeling like a wuss at the moment)

[baileysstruggles]

hi, i just wanted to come on here and say that i’m just going through my diagnosis of endometriosis, and the first female doctor i’ve seen told me my occuring “UTIs” were endometriosis all along, so if you haven’t already please go and see a doctor. long term lower pelvic pain is a massive red flag for it

[PeriMenoEndo in reply to baileysstruggles]

Hi there, I just typed a long reply that got deleted 😩 Read and watch the videos on Live UTI Free’s website, tests are in accurate 50% of the time and we need longer courses of antibiotics often. If it’s reoccurring it may actually be a chronic embedded infection but there are treatments. Been through this for 4 years and it’s hideous, far worse than endo alone. I’m trying to persuade the gynaes to give me a hysterectomy as although sensitive test results show no bacteria, bladder symptoms awful still.

Also check out Jude bladder website for blogs. Some good info there too.

And diet wise, look up IC diet, remove gluten, cows dairy, sugar and sweeteners

Could you see a different surgeon willing to remove tissue from the bladder?

Good luck, I really sympathise. Be kind to yourself, it’s really tough x

See

[BloomingMarvellous]

ouch , been there and got several t-shirts. A few things …. It may have gone up to the kidneys and this can make you super ill. UTI’s aren’t a walk in the park endo or not. So keep up with the painkillers, water, rest but if it’s no better or you’re worsening go back to Drs.

If you drink sufficient water it should really help overall with the UTI’s but that’s not just when you have them. A regular 2-3 litres a day (depending height / weight ) has seen me right for the most part split over the day . It improved my flow and reduced the false bladder signalling . I pee more in one shot but less frequently.

It’s worth reading on klebiesella, LPS and endo and looking at nutritional support with that. Klebiesella can cause lactose tolerance changes and LPS is found in increased levels with endo causing more inflammation. I found reservatol and quercitin with bromalain helpful. If you want info around this a good good to is Katie Edmonds Heal Endo book

[Marypoppins54]

Hey there, I have been exactly the same for years. It's a horrendous place to be and so debilitating.

Firstly things that helped me was zero alcohol and sugar seemed to inflame it further so try to limit those as much as poss. Anything really acidic was awful, took a long time to diagnosis the endo on bladder for me. I ended up paying for private consultation resulting in laparoscopy which then discovered endo and adenomyosis everywhere.

Fast forward to 6weeks ago and have had a full hysterectomy with cervix, ovaries and fallopian tubes out along with uterus. Currently had no symptoms of uti or bladder issues so finger's crossed it's going to stay that way.

One thing I did have from a great GP was Oxybutin which helps you not go as frequently. Mine would start as a uti but the endo had inflamed the bladder so much that the uti would be cleared by antibiotics....although much longer courses than normal.....but still be so irritated and have similar symptoms. That drug really helped me short time just for some relief.

Good luck, hope it gets sorted for you x