Endometriomas help: I’ve just had my MRI... - Endometriosis UK

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Endometriomas help

Pastablue profile image
7 Replies

I’ve just had my MRI results which indicate a 5cm endometrioma and a 3cm endometrioma on one ovary and a 2cm on the other. Nothing else was reported or flagged in the pelvis (from MRI/ultrasound)

Any indications of how serious this is/has anyone had similar ? I’m supposed to be going travelling for a year in 2 weeks time and freaking out whether I should still be going.

I’ve been referred to a specialist now but god knows how long that will take (UK based/ on the NHS).

Just wanting some reassurance / any similar experiences ?

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Pastablue profile image
Pastablue
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7 Replies
Sunset-lady profile image
Sunset-lady

Hi, I have a large endometrioma on my left ovary. My cervix and bowel and left ovary are fused. It doesn't cause me much pain. I'm 51 and I would say go travelling. Don't let this stop your plans. See a specialist when you can if youre on the wairting list. If they were overly concerned they'd fast track you. Live your life lovely 😍

Sunset-lady profile image
Sunset-lady

Don't drink too much tequila x

Janeflowers profile image
Janeflowers

I would agree with sunset lady , I have a 6.5 cm endometrioma on one ovary and 3 cm on the other , my consultant doesn’t want to do the surgery. So just monitoring with ultrasound every 6months to check they are not growing

Pastablue profile image
Pastablue in reply toJaneflowers

Can I ask why they don’t want to do the surgery?

KittyTherapy profile image
KittyTherapy

Hi, I had an endometrioma diagnosed well over a year (most likely been there for longer) before i had surgery to remove (on the NHS). I just carried on with life as normal. Wasn't told to do anything differently in the mean time whilst awaiting the surgery. I went on holiday abroad x

Janeflowers profile image
Janeflowers

I have had 2 major abdominal surgeries one very complicated as endometriosis stuck to bowel and uretha with partial hysterectomy , My ovaries are stuck together on stump of cervix and tethered to bowel, suggesting difficult surgery. I was on waitlist for 2 years , honestly I think the risks of surgery were too great for them to manage and wouldn’t necessarily make my life better. I am 55 so probably in throws of menopause, The cysts have not grown much in 2 years and my symptoms have reduced. So will wait and see

fed_up_of_endo profile image
fed_up_of_endo

I had a 10cm endometrioma a that ruptured.... It hurt, but I am still here with no medical intervention. Go travel, have fun, deal with it if/when you have to - maybe look at insurance to cover you should you happen to need it for the peace of mind?

Also, time between finding the endometrioma (through private scan) and seeing an NHS consultant on an "urgent" referral was 10 months, so you'll likely be ok!

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